Musetti Alessandro, Manari Tommaso, Dioni Barbara, Raffin Cinzia, Bravo Giulia, Mariani Rachele, Esposito Gianluca, Dimitriou Dagmara, Plazzi Giuseppe, Franceschini Christian, Corsano Paola
Department of Humanities, Social Sciences and Cultural Industries, University of Parma, Borgo Carissimi 10, 43121 Parma, Italy.
Fondazione Bambini e Autismo Onlus, 33170 Pordenone, Italy.
J Pers Med. 2021 Sep 8;11(9):894. doi: 10.3390/jpm11090894.
Previous research has examined several parental, child-related, and contextual factors associated with parental quality of life (QoL) among parents with a child or an adolescent with autism spectrum disorders (ASD); however, no systematic review has examined the relationship between parental QoL and parental involvement in intervention. To fill this gap, a systematic review was conducted using four electronic databases and checked reference lists of retrieved studies. Records were included in the systematic review if they presented original data, assessed parental QoL, and involvement in intervention for children or adolescents with ASD, were published in peer-reviewed journals between 2000 and 2020, and were written in English. Among the 96 screened full-texts, 17 articles met the eligibility criteria. The selected studies included over 2000 parents of children or adolescents with ASD. Three categories of parental involvement (i.e., none, indirect, direct) were identified, which varied across studies, although most had direct parental involvement. The results from this review show that increased parental involvement in the intervention for children or adolescents with ASD may be one way to promote their QoL. However, further research specifically focused on parental involvement during the intervention for children and adolescents with ASD is warranted.
以往的研究探讨了与患有自闭症谱系障碍（ASD）的儿童或青少年的父母生活质量（QoL）相关的几个父母、儿童相关和背景因素；然而，尚无系统评价研究父母生活质量与父母参与干预之间的关系。为填补这一空白，我们使用四个电子数据库进行了一项系统评价，并检查了检索到的研究的参考文献列表。如果记录呈现原始数据、评估了父母生活质量以及父母对患有ASD的儿童或青少年的干预参与情况、在2000年至2020年期间发表于同行评审期刊且用英文撰写，则将其纳入系统评价。在96篇筛选出的全文中，有17篇文章符合纳入标准。所选研究纳入了2000多名患有ASD的儿童或青少年的父母。确定了三类父母参与（即无、间接、直接），尽管大多数研究中有直接的父母参与，但不同研究之间存在差异。本评价结果表明，增加父母对患有ASD的儿童或青少年干预的参与度可能是提高其生活质量的一种方式。然而，有必要进一步开展专门针对患有ASD的儿童和青少年干预期间父母参与情况的研究。
