Polikandrioti Maria, Tsami Athanasia, Tsoulou Vasiliki, Maggita Andriana
Department of Nursing, University of West Attica, 12244 Athens, Greece.
Healthcare (Basel). 2025 Aug 13;13(16):1986. doi: 10.3390/healthcare13161986.
Patients with heart failure (HF) experience increased morbidity, limited daily activities, and diminished quality of life (QoL), thus relying on a family member, widely known as informal caregiver, for support. The objective of this study was to explore (a) QoL, anxiety, and depression; (b) factors associated with QoL; and (c) the impact of associated factors on QoL among HF caregivers. Data collection was performed using the -Item Short Form (), the Hospital Anxiety and Depression Scale (HADs), and the European Heart Failure Self-care Behavior Scale (EHFScBS). Also recorded were characteristics of caregivers and patients. In the present study, 110 HF caregivers and the family members they provided care to were enrolled. The majority of caregivers were patients' spouses (60%) and were female (71.8%). Within a QoL score range of 0-100, caregivers showed moderate to high levels in role-physical, role-emotional, emotional well-being, and pain (median: 75, 66.7, 64, and 67.5, respectively); moderate QoL levels in energy/fatigue, social functioning, and general health (median: 55, 56.3, and 62, respectively); and poor QoL levels in physical functioning (median: 18). Moreover, 64.5% of caregivers had anxiety and 41.8% had depression. Caregivers with HADs scores that indicate anxiety and depression had worse QoL ( = 0.001). No association was detected between caregivers' QoL and patients' HADs and self-care. QoL and anxiety/depression merit further research by clinicians, health systems, and policymakers so that evidence-based policies and interventional programs tailored to their needs can be implemented.
心力衰竭（HF）患者的发病率增加，日常活动受限，生活质量（QoL）下降，因此依赖家庭成员（即广为人知的非正式照料者）提供支持。本研究的目的是探讨：（a）生活质量、焦虑和抑郁；（b）与生活质量相关的因素；（c）相关因素对心力衰竭照料者生活质量的影响。使用简式36项健康调查量表（SF-36）、医院焦虑抑郁量表（HADS）和欧洲心力衰竭自我护理行为量表（EHFScBS）进行数据收集。还记录了照料者和患者的特征。在本研究中，纳入了110名心力衰竭照料者及其照料的家庭成员。大多数照料者是患者的配偶（60%），且为女性（71.8%）。在生活质量得分范围为0至100的情况下，照料者在角色-身体、角色-情感、情感健康和疼痛方面表现为中度至高度水平（中位数分别为75、66.7、64和67.5）；在精力/疲劳、社会功能和总体健康方面生活质量水平为中度（中位数分别为55、56.3和62）；在身体功能方面生活质量水平较差（中位数为18）。此外，64.5%的照料者有焦虑，41.8%的照料者有抑郁。医院焦虑抑郁量表得分显示有焦虑和抑郁的照料者生活质量更差（P = 0.001）。未发现照料者的生活质量与患者的医院焦虑抑郁量表得分及自我护理之间存在关联。临床医生、卫生系统和政策制定者应对生活质量和焦虑/抑郁进行进一步研究，以便能够实施基于证据的、满足他们需求的政策和干预项目。
