Rozo Ana Júlia, Schneiders Milena, Palombit Mateus Rodrigo, Sinski Kassiano Carlos, de Lima Carmo Rafael, Garcia Ana Cláudia Mesquita, Araújo Jeferson Santos, de Oliveira Vargas Bitencourt Júlia Valéria, Dantas Rosana Aparecida Spadoti, da Conceição Vander Monteiro
Federal University of Fronteira Sul, Chapecó, Santa Catarina, Brazil.
Master Candidate, Federal University of Alfenas, Alfenas, Minas Gerais, Brazil.
Can Oncol Nurs J. 2025 Mar 1;35(2):361-375. doi: 10.5737/23688076352361. eCollection 2025 Spring.
The study aimed to understand the triggering events of moral distress according to the family caregivers of people with cancer in palliative care. This is a longitudinal qualitative approach study, using the concept of moral distress as an interpretative reference. Ten family caregivers participated in in-depth interviews. The data were analyzed according to the inductive thematic analysis technique, and two themes were identified. In the first theme, entitled "The repercussions following diagnosis," participants reported the uncertainties they experienced following their family member's cancer diagnosis. In the second theme, entitled "The transformation of daily life", participants expressed how providing care for the family member with cancer changed their daily lives. While experiencing the role of a caregiver, they faced dilemmas and uncertainties that led them to feel moral distress, since this situation will follow them continuously until the outcome of the disease.
该研究旨在根据姑息治疗中癌症患者的家庭照顾者，了解道德困扰的触发事件。这是一项纵向定性研究，将道德困扰的概念作为解释参考。十名家庭照顾者参与了深入访谈。数据根据归纳主题分析技术进行分析，确定了两个主题。在第一个主题“诊断后的影响”中，参与者报告了他们在家庭成员被诊断患有癌症后所经历的不确定性。在第二个主题“日常生活的转变”中，参与者表达了照顾患癌家庭成员如何改变了他们的日常生活。在扮演照顾者角色的过程中，他们面临困境和不确定性，这使他们感到道德困扰，因为这种情况将持续伴随他们，直到疾病的结果出现。
