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实现安全且自主的健康数据共享和同意管理。

Enabling secure and self determined health data sharing and consent management.

作者信息

Welzel Cindy, Ostermann Max, Smith Hannah Louise, Minssen Timo, Kirsten Toralf, Gilbert Stephen

机构信息

Else Kröner Fresenius Center for Digital Health, TUD Dresden University of Technology, Dresden, 01307, Germany.

Center for Advanced Studies in Bioscience Innovation Law (CeBIL), University of Copenhagen, Copenhagen, 2300, Denmark.

出版信息

NPJ Digit Med. 2025 Aug 30;8(1):560. doi: 10.1038/s41746-025-01945-z.

Abstract

Digital health tools generate vast sensitive data not only in clinic but also from apps and wearables. Effective consent management builds trust, increasing willingness for data sharing. We present a novel early-stage conceptual framework, reviewing technologies like blockchain, self-sovereign identity, and de-identified tokens for integration into a consent management system to enable tracking of consent and data utilization. This balances data access and privacy to encourage data sharing and improve healthcare.

摘要

数字健康工具不仅在临床环境中,还从应用程序和可穿戴设备中生成大量敏感数据。有效的同意管理能够建立信任,提高数据共享的意愿。我们提出了一个新颖的早期概念框架,审视了区块链、自主身份识别和去标识化令牌等技术,以便将其集成到同意管理系统中,从而实现对同意和数据使用情况的跟踪。这平衡了数据访问和隐私,以鼓励数据共享并改善医疗保健。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9428/12398500/b5fc17cb9cae/41746_2025_1945_Fig1_HTML.jpg

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