Werfel Krystal L, Okosi Eddie, Grey Brittany, Swindale Cora, Lund Emily A
Boys Town National Research Hospital, Omaha, NE.
Western Washington University.
J Early Hear Detect Interv. 2024;9(1):7-16. doi: 10.26077/43e9-9f6e.
The Joint Committee on Infant Hearing guidelines recommend that children who are deaf and hard of hearing should begin early intervention by six months of age. However, prior work has revealed a substantial percentage of children who receive a diagnosis of hearing loss by three months of age, but do not enroll in early intervention by six months of age (Grey et al., 2022). To further understand barriers to enrollment in early intervention for these families, we completed qualitative semi-structured interviews with 10 caregivers whose children were diagnosed with hearing loss by three months of age but did not begin early intervention by six months. We recruited from participants in Grey et al. (2022). Interviews were coded using the Bioecological Model of Human Development (Bronfenbrenner & Morris, 2006) as a guiding framework. The interviews revealed widespread barriers encountered by families of children who are deaf and hard of hearing across ecological systems, ranging from child characteristics to macro-level issues like insurance coverage. To ensure that all children who are diagnosed with hearing loss have timely access to early intervention, changes to current policy and practice are needed across multiple ecological systems.
婴儿听力联合委员会指南建议,失聪和听力受损儿童应在六个月大时开始早期干预。然而,先前的研究表明,相当一部分儿童在三个月大时被诊断出听力损失,但在六个月大时并未参加早期干预(格雷等人,2022年)。为了进一步了解这些家庭在参加早期干预方面的障碍,我们对10名照顾者进行了定性半结构化访谈,这些照顾者的孩子在三个月大时被诊断出听力损失,但在六个月大时并未开始早期干预。我们从格雷等人(2022年)的参与者中招募。访谈采用人类发展的生物生态模型(布朗芬布伦纳和莫里斯,2006年)作为指导框架进行编码。访谈揭示了失聪和听力受损儿童家庭在各个生态系统中遇到的广泛障碍,从儿童特征到保险覆盖等宏观层面问题。为确保所有被诊断出听力损失的儿童都能及时获得早期干预,需要在多个生态系统中对现行政策和做法进行变革。