Reynolds Gabriella, Werfel Krystal L, Vachio Morgan, Lund Emily A
Long Island University Post.
Boys Town National Research Hospital.
J Early Hear Detect Interv. 2023;8(1):56-68. doi: 10.26077/6d9d-06f3.
Guidelines created by the American Academy of Pediatrics ([AAP], 2010) and the Joint Committee on Infant Hearing ([JCIH], 2019) were designed to aid in the early identification of infant hearing loss. Despite these guidelines, a quarter of children who do not pass their initial screening are lost to the follow-up process and many more do not receive care in line with the 1-3-6 guidelines (Centers for Disease Control and Prevention [CDC], 2018; JCIH, 2019). To acquire more information about the experiences of families and identify specific barriers to timely diagnosis and intervention, interviews were conducted with 13 parents of children who are deaf or hard of hearing whose children were enrolled in a larger longitudinal study. These interviews revealed common themes regarding delayed identification, frustrations about timely intervention, and confusion when choosing communication modalities. Common themes amongst families who felt well-supported were also identified.
美国儿科学会（AAP，2010年）和婴儿听力联合委员会（JCIH，2019年）制定的指南旨在帮助早期识别婴儿听力损失。尽管有这些指南，但四分之一初次筛查未通过的儿童在后续流程中失访，还有更多儿童未按照1-3-6指南接受护理（疾病控制与预防中心[CDC]，2018年；JCIH，2019年）。为了获取更多关于家庭经历的信息，并确定及时诊断和干预的具体障碍，对13名失聪或听力障碍儿童的家长进行了访谈，这些儿童参与了一项规模更大的纵向研究。这些访谈揭示了关于延迟识别、及时干预方面的挫折以及选择沟通方式时的困惑等共同主题。同时也确定了那些感觉得到良好支持的家庭中的共同主题。
