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对自闭症群体自杀倾向及自杀预防需求的影响:多视角的质性见解

Influences on suicidality and suicide-prevention needs for the autistic community: Qualitative insights from multiple perspectives.

作者信息

Kirby Anne V, Feldman Kristina, Clark Wilhelm, Darlington Amber N, Atisme Alissa, Duncan-Ishcomer Bobbi, Kripke-Ludwig Rachel, Joyce Andrea, Lee Whitney, Rodriguez Kayla, Siddeek Zack, Murthi Kavitha, Keeshin Brooks, Coon Hilary, Nicolaidis Christina

机构信息

The University of Utah, USA.

Academic Autism Spectrum Partnership in Research and Education, USA.

出版信息

Autism. 2025 Sep 4:13623613251368019. doi: 10.1177/13623613251368019.

DOI:10.1177/13623613251368019
PMID:40905628
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12412899/
Abstract

Autistic individuals are disproportionately likely to experience suicidal thoughts, feelings, and actions. Addressing suicidality is also a high priority of autistic community members. The goal of this study was to understand broad influences on suicidality and suicide-prevention needs for the autistic community. Using a community-based participatory research approach, we conducted a reflective thematic analysis of qualitative interviews with 16 autistic adults, 8 family members, and 14 mental health providers. Themes summarizing influences on suicidality and suicide-prevention needs centered on three broad thematic concepts: (1) Pervasive negative societal attitudes and social experiences have a lasting impact on autistic people's feelings of worth; (2) negative experiences and stressors add strain, making life feel overwhelming and hopeless; and (3) difficulty regulating and managing emotions can increase the likelihood of suicidal feelings and actions. Participants provided autism-specific recommendations to incorporate into suicide prevention. The findings emphasize the need for multifaceted suicide-prevention efforts supporting autistic people through improved societal treatment, community-level supports, and individually tailored services.Lay AbstractAutistic people experience suicidal thoughts, feelings, and actions more often than non-autistic people. Autistic community members say this is an important research topic. The goal of this study was to understand broadly what kinds of things might lead autistic people to feel suicidal. We also wanted to know what is needed for suicide prevention for the autistic community. The research team for this study included autistic community partners using an approach called community-based participatory research. The study team did interviews with 16 autistic adults, 8 family members, and 14 mental health providers. The results show that different types of experiences can lead to suicidality. One influence is the negative treatment of autistic people. Negative experiences, challenges, and stressors can also make life feel overwhelming for autistic people. Finally, difficult emotions can be hard to manage. There are many things that participants thought would help autistic people feel less suicidal. The study shows that autistic people need to be treated better and need more community supports to help prevent suicidal feelings. They need individualized services to help manage their emotions.

摘要

自闭症患者出现自杀念头、自杀情绪和自杀行为的可能性极高。解决自杀问题也是自闭症群体成员的首要任务。本研究旨在了解影响自闭症群体自杀行为的广泛因素以及自杀预防需求。我们采用基于社区的参与性研究方法,对16名成年自闭症患者、8名家庭成员和14名心理健康服务提供者进行了定性访谈,并开展了反思性主题分析。总结影响自杀行为和自杀预防需求的主题集中在三个广泛的主题概念上:(1)普遍存在的负面社会态度和社会经历对自闭症患者的自我价值感产生了持久影响;(2)负面经历和压力源增加了压力,使生活感到不堪重负和绝望;(3)情绪调节和管理困难会增加自杀情绪和行为的可能性。参与者提供了针对自闭症的预防自杀建议。研究结果强调,需要通过改善社会对待方式、社区层面的支持和个性化服务,开展多方面的自杀预防工作,以支持自闭症患者。

摘要

自闭症患者比非自闭症患者更容易出现自杀念头、自杀情绪和自杀行为。自闭症群体成员表示,这是一个重要的研究课题。本研究旨在广泛了解哪些因素可能导致自闭症患者产生自杀念头。我们还想了解自闭症群体预防自杀需要什么。本研究的团队包括自闭症群体合作伙伴,采用了一种名为基于社区的参与性研究方法。研究团队对16名成年自闭症患者、8名家庭成员和14名心理健康服务提供者进行了访谈。结果表明,不同类型的经历会导致自杀行为。一个影响因素是对自闭症患者的负面对待。负面经历、挑战和压力源也会使自闭症患者感到生活不堪重负。最后,难以管理的情绪也会带来困扰。参与者认为有很多事情可以帮助自闭症患者减少自杀念头。研究表明,自闭症患者需要得到更好的对待,需要更多的社区支持来预防自杀情绪。他们需要个性化服务来帮助管理情绪。

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本文引用的文献

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Elevated Suicidal Thoughts and Behaviors and Nonsuicidal Self-Injury in Autistic Youth and Adults: A Multinational Study.自闭症青少年和成年人中自杀念头和行为增加以及非自杀性自伤行为:一项跨国研究。
Autism Adulthood. 2025 Mar 13. doi: 10.1089/aut.2024.0225.
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Suicidal Thoughts and Behaviors Among Autistic Transgender or Gender-Nonconforming US College Students.自闭症跨性别或性别非典型美国大学生的自杀念头和行为。
JAMA Netw Open. 2024 Oct 1;7(10):e2438345. doi: 10.1001/jamanetworkopen.2024.38345.
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Why Are Autistic People More Likely to Experience Suicidal Thoughts? Applying the Integrated Motivational-Volitional Model with Autistic Adults.为什么自闭症患者更容易产生自杀念头?将综合动机-意志模型应用于成年自闭症患者。
Autism Adulthood. 2024 Sep 16;6(3):272-283. doi: 10.1089/aut.2023.0039. eCollection 2024 Sep.
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Suicidal Thoughts and Behaviors in People on the Autism Spectrum.自闭症谱系人群的自杀念头与行为
Curr Psychiatry Rep. 2024 Nov;26(11):563-572. doi: 10.1007/s11920-024-01533-0. Epub 2024 Sep 30.
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Chronic suicidal ideations: a risk or a protection.慢性自杀意念:一种风险还是一种保护?
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Feasibility and acceptability of autism adapted safety plans: an external pilot randomised controlled trial.自闭症适应性安全计划的可行性与可接受性:一项外部试点随机对照试验
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Suicidal Thoughts and Behaviors Among Children and Adolescents With Autism Spectrum Disorder.自闭症谱系障碍儿童和青少年中的自杀念头及行为
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Are autistic females at greater risk of suicide? A call for clarity to advance suicide prevention for the whole community.自闭症女性自杀风险更高吗?呼吁提高认识,全面预防自杀。
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