晚期癌症患者家庭的精神健康与照护负担：情绪困扰是关键因素吗？
Spiritual Well-Being and Care Burden among Families of Patients with Terminal Cancer: Is Emotional Distress a Crucial Thing?
作者信息
Lee Chung Woo, Hwang In Cheol, Lee Yoo Jeong
机构信息
Department of Family Medicine, Veterans Health Service Medical Center, Seoul, Korea.
Department of Family Medicine, Gil Medical Center, Gachon University College of Medicine, Incheon, Korea.
出版信息
J Hosp Palliat Care. 2025 Sep 1;28(3):115-119. doi: 10.14475/jhpc.2025.28.3.115.
PURPOSE
This study investigated the association between spiritual well-being and care burden among family caregivers of patients with terminal cancer.
METHODS
Data from 172 family caregivers from nine hospice care units in South Korea were analyzed using multivariate regression models. Spiritual well-being was measured using the Functional Assessment of Chronic Illness Therapy - Spiritual Well-being questionnaire, and the subjective care burden on family caregivers was assessed using the Caregiver Reaction Assessment tool.
RESULTS
The current study demonstrated a positive association between spiritual well-being and family caregivers' care burden, which is consistent with a previous study that evaluated anxiety. On the subscales, disrupted schedules were positively associated with the meaning/peace domain. Further analysis revealed that adjusting for emotional distress changed the direction of the association or mitigated the magnitude of the association.
CONCLUSION
Among family caregivers of patients with cancer, spiritual well-being reflects their care burden, in which emotional distress may play an important role.
目的
本研究调查了晚期癌症患者家庭照顾者的精神幸福感与照顾负担之间的关联。
方法
使用多变量回归模型对来自韩国九个临终关怀护理单位的172名家庭照顾者的数据进行了分析。精神幸福感采用慢性病治疗功能评估 - 精神幸福感问卷进行测量，家庭照顾者的主观照顾负担采用照顾者反应评估工具进行评估。
结果
本研究表明精神幸福感与家庭照顾者的照顾负担之间存在正相关，这与之前一项评估焦虑的研究结果一致。在各子量表中，日程安排紊乱与意义/平静领域呈正相关。进一步分析表明，调整情绪困扰会改变关联方向或减轻关联程度。
结论
在癌症患者的家庭照顾者中，精神幸福感反映了他们的照顾负担，其中情绪困扰可能起着重要作用。
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