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本文引用的文献

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An Equity-Based Scoring System for Evaluating Surveillance-Related Harm in Public Health Crises.基于公平的公共卫生危机监测相关危害评估计分系统。
Ethn Dis. 2023 Mar 31;33(1):63-75. doi: 10.18865/2022-2022. eCollection 2023 Jan.
2
Adequacy of Existing Surveillance Systems to Monitor Racism, Social Stigma and COVID Inequities: A Detailed Assessment and Recommendations.现有监测系统监测种族主义、社会耻辱和 COVID 不平等现象的充分性:详细评估和建议。
Int J Environ Res Public Health. 2021 Dec 12;18(24):13099. doi: 10.3390/ijerph182413099.
3
Fundamentally uncaring: The differential multi-scalar impacts of COVID-19 in the U.S.漠不关心的根源:COVID-19 在美国的差异化多尺度影响
Soc Sci Med. 2021 Mar;272:113707. doi: 10.1016/j.socscimed.2021.113707. Epub 2021 Jan 19.
4
When silence goes viral, Africa sneezes! A perspective on Africa's subdued research response to COVID-19 and a call for local scientific evidence.当沉默在网络上蔓延,非洲就会打喷嚏!对非洲在 COVID-19 研究方面反应迟钝的看法,以及对当地科学证据的呼吁。
Environ Res. 2021 Mar;194:110637. doi: 10.1016/j.envres.2020.110637. Epub 2020 Dec 26.
5
Synergistic Disparities and Public Health Mitigation of COVID-19 in the Rural United States.美国农村地区 COVID-19 的协同差异与公共卫生缓解措施。
J Bioeth Inq. 2020 Dec;17(4):649-656. doi: 10.1007/s11673-020-10049-0. Epub 2020 Nov 9.
6
The Color of COVID-19: Structural Racism and the Disproportionate Impact of the Pandemic on Older Black and Latinx Adults.《新冠疫情的色彩:结构性种族主义与大流行对老年黑人和拉丁裔成年人的不成比例影响》。
J Gerontol B Psychol Sci Soc Sci. 2021 Feb 17;76(3):e75-e80. doi: 10.1093/geronb/gbaa114.
7
Public health surveillance and knowing about health in the context of growing sources of health data.公共卫生监测以及在健康数据不断增加的背景下了解健康。
Am J Prev Med. 2011 Dec;41(6):636-40. doi: 10.1016/j.amepre.2011.08.015.

开发一个伦理/社会正义监测系统(ESJSS):一个方法框架。

Developing an Ethical/Social Justice Surveillance System (ESJSS): A Methodological Framework.

作者信息

Hodge David Augustin, Behar-Horenstein Linda S, Onwuachi-Saunders Chu Chu, Alcena Bianca, Lynum-Williams Terrilyn

机构信息

Bioethics Honors Ambassador.

Bioethics Honors Student.

出版信息

J Healthc Sci Humanit. 2024 Fall;14(1):193-211.

PMID:40927607
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12416231/
Abstract

Efforts to reduce the unequal impacts and generations of systemic disadvantage and inequality in healthcare for black and brown communities became amplified and were made more urgent during the COVID-19 pandemic. Moreover, public health surveillance systems have been challenged to address the vulnerabilities that residents within these environments and experiences. This paper describes the methodology used to develop a public health ethics and bioethics surveillance system grounded in empathy and care ethics. This surveillance system was designed to assess the prevalence of ethical and social justice violations relative to the COVID-19 vaccines administration. The authors describe the methods used to establish content validity of the questionnaire, evaluate the data, and compare three ethical theories (i.e., deontology, utilitarianism, and care ethics) that would best undergird public health ethics to increase health equity.

摘要

在新冠疫情期间,为减少医疗保健领域中黑人和棕色社区所面临的系统性劣势和不平等的不平等影响及代际问题而做出的努力得到了加强,并变得更加紧迫。此外,公共卫生监测系统面临着应对这些环境中的居民的脆弱性及相关经历的挑战。本文描述了用于开发一个基于同理心和关怀伦理的公共卫生伦理与生物伦理监测系统的方法。该监测系统旨在评估与新冠疫苗接种相关的伦理和社会正义侵犯行为的发生率。作者描述了用于确立问卷内容效度、评估数据以及比较三种最能支撑公共卫生伦理以促进健康公平的伦理理论(即道义论、功利主义和关怀伦理)的方法。