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血液系统癌症患儿从医院到家庭过渡期间的教育护理需求

Educational-Care Needs for Hospital-Home Transition of Children With Hematological Cancer.

作者信息

Vieira Thais Maia Teixeira, da Silva Liliane Faria, Góes Fernanda Garcia Bezerra, de Souza Tania Vignuda, Nunes Michelle Darezzo Rodrigues, de Moraes Juliana Rezende Montenegro Medeiros

机构信息

Anna Nery School of Nursing (EEAN), Universidade Federal do Rio de Janeiro (UFRJ), Rua Afonso Cavalcanti, 275, Cidade Nova, Rio de Janeiro, Brazil.

Aurora de Afonso Costa School of Nursing (EEAAC), Universidade Federal Fluminense (UFF), Rua Dr. Celestino, 74-Centro, Niterói, Rio de Janeiro, Brazil.

出版信息

Nurs Res Pract. 2025 Sep 2;2025:4551422. doi: 10.1155/nrp/4551422. eCollection 2025.

Abstract

The transition from hospital to home is a critical period for families of children with cancer, requiring adaptation and new knowledge acquisition to manage treatment at home. Lack of adequate preparation can generate insecurity and negatively impact the quality of home care. To describe the educational and care demands of family members of children with cancer during the hospital-home transition. By addressing these needs, this study seeks to contribute to health education practices which facilitate a safer and less stressful transition for families. This is a qualitative and descriptive study developed through semistructured interviews from July to October 2023, with 20 family members of children with cancer undergoing chemotherapy treatment in a public pediatric hospital located in Brazil. The data were processed in Iramuteq software, organized by descending hierarchical classification for lexical analysis and interpreted in light of Afaf Meleis' transitions theory. Two thematic blocks were structured related to the guidance required by family members and strategies for home care, as well as guidance shared by nurses for the hospital-to-home transition. The educational-care demands included the need for guidance. The study demonstrated the need for nursing actions related to guidance for families on the care to be developed after discharge, with the aim of helping them deal with stressful situations, challenges, and difficulties associated with the hospital-to-home transition process. Nurses should be attentive to the educational-care demands of families, recognizing their particular difficulties and promoting collaborative, welcoming, and healthy learning environments.

摘要

从医院过渡到家庭对癌症患儿的家庭来说是一个关键时期,需要适应并获取新知识以在家中管理治疗。准备不足会产生不安全感,并对家庭护理质量产生负面影响。描述癌症患儿家庭成员在医院向家庭过渡期间的教育和护理需求。通过满足这些需求,本研究旨在为健康教育实践做出贡献,从而为家庭促成更安全、压力更小的过渡。这是一项定性描述性研究,于2023年7月至10月通过半结构化访谈开展,研究对象为巴西一家公立儿童医院中20名正在接受化疗治疗的癌症患儿的家庭成员。数据在Iramuteq软件中进行处理,通过降序层次分类进行组织以进行词汇分析,并根据阿法夫·梅莱伊斯的过渡理论进行解读。构建了两个主题板块,一个与家庭成员所需的指导以及家庭护理策略有关,另一个与护士为从医院过渡到家庭所提供的指导有关。教育护理需求包括指导需求。该研究表明需要采取护理行动,为家庭提供出院后护理方面的指导,以帮助他们应对与从医院过渡到家庭的过程相关的压力情况、挑战和困难。护士应关注家庭的教育护理需求,认识到他们的特殊困难,并营造协作、友好和健康的学习环境。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3da1/12419924/be113ad6f08a/NRP2025-4551422.001.jpg

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