Li Yuanyuan, Cheng Lin, Xie Yuxi, Wang Lan, Liang Guanmian, Lou Yan
School of Public Health and Nursing, Hangzhou Normal University, Hangzhou, China.
Department of Nursing, Beilun District People's Hospital, Ningbo, China.
Asia Pac J Oncol Nurs. 2025 Aug 18;12:100773. doi: 10.1016/j.apjon.2025.100773. eCollection 2025 Dec.
This study aimed to explore the experiences of patients with oral cancer in coping with dysphagia from the perspective of self-advocacy.
A descriptive qualitative research design was adopted. From March to May 2024, face-to-face, in-depth semi-structured interviews were conducted with 21 patients with oral cancer at a tertiary cancer hospital. The interview guide was developed based on the self-advocacy framework, and data were analyzed using the directed content analysis method.
Findings were organized within the self-advocacy framework, yielding three main categories and eight sub-categories: 1) Thoughts and cognition - cognitive misunderstanding, realignment of expectations and goals, and loss of control; 2) Actions for self - communication barriers with medical professionals, limited reliance on physicians, and information seeking via the internet; 3) Utilization of resources - two-way tension of family support, dual effects of peer support, and structural economic exclusion.
Patients with oral cancer face multiple barriers in coping with dysphagia, including cognitive limitations, insufficient medical coping strategies, and challenges in resource utilization. These factors interact with one another, influencing patients' self-advocacy and coping status.
本研究旨在从自我倡导的角度探索口腔癌患者应对吞咽困难的经历。
采用描述性定性研究设计。2024年3月至5月，在一家三级癌症医院对21名口腔癌患者进行了面对面的深入半结构化访谈。访谈指南基于自我倡导框架制定，数据采用定向内容分析法进行分析。
研究结果在自我倡导框架内进行组织，产生了三个主要类别和八个子类别：1）思想与认知——认知误解、期望和目标的重新调整以及失去控制；2）自我行动——与医疗专业人员的沟通障碍、对医生的有限依赖以及通过互联网寻求信息；3）资源利用——家庭支持的双向张力、同伴支持的双重影响以及结构性经济排斥。
口腔癌患者在应对吞咽困难方面面临多重障碍，包括认知局限、医疗应对策略不足以及资源利用方面的挑战。这些因素相互作用，影响患者的自我倡导和应对状态。
Zotero 插件