Harfoush Allam, Chatterjee Kausik, Hamdallah Hanady
The Faculty of Health, Medicine, and Society, University of Chester, Chester, CH1 4BJ, UK.
North Bristol NHS Foundation Trust, Southmead Road, Bristol, BS10 5NB, UK.
J Health Popul Nutr. 2025 Sep 26;44(1):327. doi: 10.1186/s41043-025-01046-3.
Stroke survivors' knowledge of their condition is essential for self-management and adherence to secondary prevention strategies. However, current methods for assessing stroke knowledge are not consistent. This scoping review aimed to review existing assessment tools, evaluate their characteristics, and identify factors associated with stroke knowledge to inform the development of more effective, patient-centred educational strategies.
A scoping review was conducted to evaluate existing methods used to assess stroke knowledge and the factors influencing patients' knowledge among stroke survivors. Systematic searches of PubMed, Cochrane, and CINAHL were performed from inception to June 2025. Studies assessing stroke survivors' knowledge were included. Data were extracted on tool characteristics, assessed themes, administration methods, readability, validation, and knowledge-associated factors. Findings were qualitatively synthesised.
Thirty-nine studies were included. Most studies assessed mixed cohorts of ischaemic, haemorrhagic, and TIAs. Stroke symptoms and risk factors were the most frequently assessed themes, while rehabilitation, medications, and lifestyle behaviours were less explored. Tools were primarily self-administered questionnaires, typically completed in under 15 min, but often lacked standardised cut-off values and demonstrated limited reporting of development processes. Factors positively associated with knowledge included higher education, younger age, and healthier lifestyles.
Existing assessments of stroke survivors' knowledge have considerable variability, limited validation, and inconsistent alignment with survivors' information needs. Developing standardised, validated, and patient-centred assessment tools that are tailored to stroke type and accessible across literacy levels is essential for advancing stroke education and supporting long-term recovery. These findings can inform policymakers in tailoring education efforts and designing interventions that directly address knowledge gaps across diverse stroke survivor populations. Future research should prioritise longitudinal evaluation of knowledge and its impact on clinical outcomes.
中风幸存者对自身病情的了解对于自我管理和坚持二级预防策略至关重要。然而，目前评估中风知识的方法并不一致。本范围综述旨在回顾现有的评估工具，评估其特点，并确定与中风知识相关的因素，以为制定更有效、以患者为中心的教育策略提供信息。
进行了一项范围综述，以评估用于评估中风知识的现有方法以及影响中风幸存者知识水平的因素。从创刊至2025年6月对PubMed、Cochrane和CINAHL进行了系统检索。纳入评估中风幸存者知识的研究。提取了关于工具特点、评估主题、施测方法、可读性、效度验证以及与知识相关因素的数据。对结果进行了定性综合分析。
纳入了39项研究。大多数研究评估了缺血性、出血性和短暂性脑缺血发作的混合队列。中风症状和危险因素是最常评估的主题，而康复、药物治疗和生活方式行为方面的探讨较少。工具主要是自填式问卷，通常在15分钟内完成，但往往缺乏标准化的临界值，且开发过程的报告有限。与知识呈正相关的因素包括高等教育、较年轻的年龄和更健康的生活方式。
目前对中风幸存者知识的评估存在很大差异且效度验证有限，与幸存者的信息需求不一致。开发针对中风类型且适用于不同识字水平的标准化、经过效度验证且以患者为中心的评估工具，对于推进中风教育和支持长期康复至关重要。这些发现可为政策制定者量身定制教育工作和设计直接解决不同中风幸存者群体知识差距的干预措施提供参考。未来的研究应优先对知识及其对临床结局的影响进行纵向评估。
