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慢性病患儿的学校需求:土耳其的一项现象学研究。

School needs of children with chronic illnesses: A phenomenological study in Turkiye.

作者信息

Sal Ayşe Dilara, Doğan Türkan

机构信息

Department of Educational Sciences, National Defense University, Çankaya, Ankara 06654, Türkiye.

Department of Guidance and Psychological Counseling, Hacettepe University, Çankaya, Ankara 06800, Türkiye.

出版信息

J Pediatr Nurs. 2026 Feb 11;87:468-478. doi: 10.1016/j.pedn.2026.02.003.

Abstract

PURPOSE

This study explores the experiences of school-age children with chronic illnesses in Türkiye.

METHOD

The sample consisted of 27 students aged 8-14 in Türkiye: nine with type 1 diabetes, eight with asthma, eight with allergies, and two with epilepsy. Data were collected through semi-structured interviews using a form developed by the researcher and analyzed via Interpretative Phenomenological Analysis.

RESULTS

The analysis revealed six categories: (1) school, (2) psychosocial factors, (3) friends, (4) teachers, (5) family, and (6) information and support resources.

CONCLUSION

Students reported the need for supportive relationships and open communication for illness management. Concerns about school absenteeism during the diagnosis and treatment periods were common, with a call for greater tolerance from school personnel. Worries about the future-especially regarding careers-were frequently expressed. Some participants experienced peer bullying and expected counselor intervention, yet most had not received support due to a lack of counselor awareness. Mothers were typically identified as the main caregivers, and children expressed both gratitude and guilt.

IMPLICATIONS FOR PRACTICE

Action plans involving all stakeholders should be developed for the management of chronic illnesses in schools, and school counseling services should be made more inclusive in order to provide psychosocial support to children.

摘要

目的

本研究探讨了土耳其学龄期慢性病患儿的经历。

方法

样本包括土耳其的27名8至14岁学生:9名1型糖尿病患儿、8名哮喘患儿、8名过敏患儿和2名癫痫患儿。通过使用研究者编制的表格进行半结构化访谈收集数据,并通过解释现象学分析进行分析。

结果

分析揭示了六个类别:(1)学校,(2)心理社会因素,(3)朋友,(4)教师,(5)家庭,以及(6)信息和支持资源。

结论

学生们表示,疾病管理需要支持性的关系和开放的沟通。在诊断和治疗期间对缺课的担忧很常见,他们呼吁学校工作人员给予更大的宽容。对未来,尤其是职业方面的担忧经常被表达出来。一些参与者经历了同伴欺凌,并期望得到辅导员的干预,但由于辅导员缺乏意识,大多数人没有得到支持。母亲通常被认为是主要照顾者,孩子们既表达了感激之情,也感到内疚。

对实践的启示

应制定涉及所有利益相关者的行动计划,以管理学校中的慢性病,并且学校咨询服务应更加包容,以便为儿童提供心理社会支持。

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