Miles A
Br J Med Psychol. 1979 Dec;52(4):321-31. doi: 10.1111/j.2044-8341.1979.tb02532.x.
The study was concerned with the psycho-social consequences for married couples of multiple sclerosis being contracted by one of the partners. In particular, problems of social interaction and group identity were explored. In determining their mode of interaction with healthy people such couples can choose between normalizing, i.e. endeavouring to carry on their relationships with other people according to their pre-illness pattern, or of disassociating, i.e. turning away from former associates and seeking a new peer group among others with like affliction. In nearly every case husband and wife agreed on the choice of stratagem, a majority of the couples forming the sample opting for disassociation. Membership of the Multiple Sclerosis Society was much more usual among the disassociating couples than among those 'normalizing'. The variables of age, sex, social class and severity of illness were not found to affect the mode of interaction, whereas place of residence and medical interest in them, as perceived by patients and their spouses, were influencing factors.
该研究关注的是夫妻一方患多发性硬化症对婚姻伴侣造成的心理社会后果。具体而言,探讨了社会互动和群体认同问题。在确定与健康人的互动方式时,这类夫妻可以在两种策略中做出选择:一种是正常化,即努力按照患病前的模式与他人维持关系;另一种是脱离,即与以前的交往对象疏远,在其他患有同样疾病的人中寻找新的同龄群体。几乎在每种情况下,夫妻双方在策略选择上都达成一致,构成样本的大多数夫妻选择了脱离。与“正常化”的夫妻相比,选择脱离的夫妻加入多发性硬化症协会的情况更为常见。研究发现,年龄、性别、社会阶层和疾病严重程度等变量不会影响互动模式,而患者及其配偶所感知的居住地和对他们的医疗关注则是影响因素。