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一项针对苯丙酮尿症青春期女孩及其父母的教育与咨询项目。

An educational and counseling program for phenylketonuric adolescent girls and their parents.

作者信息

Pueschel S M, Yeatman S

出版信息

Soc Work Health Care. 1977 Fall;3(1):29-36. doi: 10.1300/J010v03n01_04.

Abstract

Since adolescent girls with phenylketonuria are in need of informed counseling, parents and their phenylketonuric daughters were invited to five successive group meetings at Children's Hospital Medical Center in Boston. During these sessions the staff reviewed general aspects of the disorder, dealt with particular problems of adolescence, and focused primarily on the complexities relating to maternal phenylketonuria. Subsequent lively discussions allowed the participants to express their feelings and concerns relative to these issues. The information conveyed will assist parents and their daughters in realistic planning for the future.

摘要

由于患有苯丙酮尿症的青春期女孩需要获得充分的咨询服务,因此,我们邀请了家长及其患有苯丙酮尿症的女儿参加在波士顿儿童医院医疗中心举办的连续五场小组会议。在这些会议期间,工作人员回顾了该疾病的一般情况,探讨了青春期的特殊问题,并主要聚焦于与母体苯丙酮尿症相关的复杂性。随后进行的热烈讨论让参与者能够表达他们对这些问题的感受和担忧。所传达的信息将帮助家长及其女儿为未来制定切实可行的计划。

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