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一项针对一系列从出生起即接受非选择性治疗的脊柱裂患者的死亡和残疾情况的研究。

A study of deaths and handicap in a consecutive series of spina bifida treated unselectively from birth.

作者信息

Hunt G M

出版信息

Z Kinderchir. 1983 Dec;38 Suppl 2:100-2. doi: 10.1055/s-2008-1063090.

Abstract

In a consecutive series of spina bifida operated unselectively at birth 62% reached the twelfth birthday and 54% could be expected to reach the nineteenth. Many of the most severely affected cases survived; if they died the cause was usually renal failure. Bronchopneumonia was the main cause of death in infants and hydrocephalus in the older children. Girls outnumbered boys by 1:1.3 and, although they were more severely affected, their survival equalled the boys'. Awareness of the high survival rate which results from the treatment of spina bifida is important for the parents of a newborn baby. It is also a prerequisite in planning provision for the young adult.

摘要

在一系列出生时未经选择就接受脊柱裂手术的病例中,62%的患者活到了12岁生日,预计54%的患者能活到19岁。许多受影响最严重的病例存活了下来;如果他们死亡,原因通常是肾衰竭。支气管肺炎是婴儿死亡的主要原因,而脑积水是大龄儿童死亡的主要原因。女孩与男孩的比例为1:1.3,尽管女孩受影响更严重,但她们的存活率与男孩相当。认识到脊柱裂治疗带来的高存活率,对新生儿的父母很重要。这也是为年轻人规划保障措施的一个先决条件。

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