Johnson G S, Johnson R H
Lancet. 1977 Jan 1;1(8001):31-4. doi: 10.1016/s0140-6736(77)91665-8.
A survey has been carries out of 104 patients with multiple sclerosis (m.s.) in West-Central-Scotland. All patients were living at home, and success of services to assist them in the community was examined. The partients were aged 16-65 years and had permanent disability, many being severely handicapped. Regular hospital follow-up was more common among the least disabled. 24 patients had never seen a social worker. Many patients had experienced problems with employment but 37 per cent of these had never registered with a disablement resettlement officer. After advice 10 additional patients applied successfully for an attendance allowance. Legislation requires local authorities to compile a register of the disabled and give information on services available to them. Only 19 patients were registered, however, and no one had received any information from a local authority. Many of these M.S. patients had failed to establish or maintain contact with available services. These results indicate a need for reorganisation of the support for the chronically disabled, possibly by setting up regular clinics for assessment and management, as recommended by the Tunbridge report (1972).
对苏格兰中西部地区的104例多发性硬化症（MS）患者进行了一项调查。所有患者均居家生活，研究对社区中协助他们的服务成效进行了考察。这些患者年龄在16至65岁之间，存在永久性残疾，许多人严重致残。残疾程度最轻的患者接受定期医院随访的情况更为普遍。24名患者从未见过社会工作者。许多患者遇到过就业问题，但其中37%的人从未在残疾安置官员处登记。经建议后，又有10名患者成功申请到了护理津贴。法律要求地方当局编制一份残疾人登记册，并提供有关他们可获得服务的信息。然而，只有19名患者进行了登记，而且没有人从地方当局收到过任何信息。这些多发性硬化症患者中的许多人未能与现有服务机构建立或保持联系。这些结果表明，可能需要按照滕布里奇报告（1972年）的建议，通过设立定期评估和管理诊所，对慢性病患者的支持体系进行重组。
