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父母被告知其子女有残疾时的经历与看法:一项调查

Parents' experiences and views on being told they have a handicapped child: a survey.

作者信息

Mitchell D R

出版信息

N Z Med J. 1981 Oct 14;94(693):263-5.

PMID:6459546
Abstract

This study examines the experiences of 152 parents of young children with special needs of when and how they were first told of their child's condition and their preferences for being told alone or together with their spouse. The point at which parents were first told differed according to the nature of the child's handicap. The medical profession and allied health services bear the brunt of informing parents. There were no significant variations in parents' experiences of who was told or their preferences for being told together or alone when the five independent variables of child's handicap, residence, child's age family size, and socio-economic status were taken into account.

摘要

本研究调查了152名有特殊需求幼儿的家长,了解他们首次得知孩子病情的时间和方式,以及他们更倾向于独自被告知还是与配偶一起被告知。家长首次被告知的时间点因孩子残疾的性质而异。医疗行业和相关健康服务机构首当其冲地承担起告知家长的责任。在考虑孩子残疾、居住地点、孩子年龄、家庭规模和社会经济地位这五个自变量时,家长在被告知者以及一起被告知或独自被告知的偏好方面没有显著差异。

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