McCusker J, Stoddard A M
Med Care. 1984 Sep;22(9):789-95. doi: 10.1097/00005650-198409000-00002.
The use of a surrogate Sickness Impact Profile (SIP) score was investigated in a sample of 66 chronically or terminally ill homebound patients and their caretakers. Statistically significant differences in category scores (P less than 0.05) were found in only two categories. Profile analysis revealed no systematic differences between patient and caretaker responses, and agreement was generally quite high. Agreement of a surrogate SIP was somewhat lower if the patient was suffering from a terminal condition, if the patient had lower educational attainment, or if the caretaker did not live in the same household as the patient. Agreement did not appear to be affected by a diagnosis of a neurologic or psychiatric condition, by the patient's age or degree of dysfunction, or by the relationship of the caretaker to the patient. Overall, the results of the study are encouraging with regard to use of surrogate SIP total and dimension scores for group-level analysis of chronically ill patients if the surrogate is a family member who is closely involved in the patient's care.
在66名长期患病或身患绝症且居家的患者及其照料者样本中，对替代疾病影响概况（SIP）评分的使用情况进行了调查。仅在两个类别中发现类别评分存在统计学显著差异（P小于0.05）。概况分析显示患者和照料者的回答之间没有系统性差异，且一致性总体相当高。如果患者患有绝症、教育程度较低，或者照料者与患者不住在同一家庭中，替代SIP的一致性会略低。一致性似乎不受神经或精神疾病诊断、患者年龄或功能障碍程度，或照料者与患者关系的影响。总体而言，如果替代者是密切参与患者护理的家庭成员，该研究结果对于使用替代SIP总分和维度评分对慢性病患者进行组水平分析而言是令人鼓舞的。
