Kaufert P L, Kaufert J M
Soc Sci Med. 1984;19(6):609-18. doi: 10.1016/0277-9536(84)90227-2.
This paper is based on a Canadian study which is examining the long term impact of disability among people who developed respiratory or non-respiratory polio during the epidemics of the 1950s and who were admitted to the same Manitoba hospital, the centralized treatment centre for the Province. This research is exploring change in the lives of these individuals by focusing on three conceptually distinct, although empirically overlapping areas or dimensions. The first is called the 'trajectory of disability' and refers to changes in functional status. The second includes those changes which are the product of the interaction between the normal processes of aging and the long term impact of poliomyelitis. The third is changes in the context of disability. This refers not only to changes in medical and technological knowledge, but sociopolitical developments including the emergence of a Disabled Rights Consumer Movement. This paper discusses the methodological and conceptual issues involved in the study, particularly its combination of different methods of data collection and the value of its historical-prospective design for capturing the effects of change over time in each of these different dimensions.
本文基于一项加拿大研究，该研究正在考察20世纪50年代疫情期间患呼吸性或非呼吸性脊髓灰质炎并入住曼尼托巴省同一家医院（该省的集中治疗中心）的人群中残疾的长期影响。这项研究通过关注三个概念上不同但在实证中相互重叠的领域或维度，探索这些个体生活中的变化。第一个领域称为“残疾轨迹”，指功能状态的变化。第二个领域包括那些因衰老的正常过程与小儿麻痹症的长期影响之间相互作用而产生的变化。第三个领域是残疾背景的变化。这不仅指医学和技术知识的变化，还包括社会政治发展，包括残疾人权利消费者运动的出现。本文讨论了该研究中涉及的方法和概念问题，特别是其不同数据收集方法的结合以及其历史前瞻性设计对于捕捉这些不同维度中随时间变化的影响的价值。
