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多发性硬化症患者的残疾状况及社会和医疗服务提供情况:新西兰惠灵顿的研究结果

Disability in multiple sclerosis and the provision of social and medical services: findings in Wellington, New Zealand.

作者信息

Johnson R H, Lambie D G, Peace K, Thompson G

出版信息

Acta Neurol Scand Suppl. 1984;101:105-12. doi: 10.1111/j.1600-0404.1984.tb02561.x.

Abstract

A study of the incapacity and socioeconomic scales in 120 patients with multiple sclerosis (MS) living in Wellington, New Zealand, is described. The questionnaire has been compared by different health professionals. There was good correlation between the observations of different professionals on incapacity analysis and this may be improved by reducing the questions to six. The findings on the socioeconomic scale, however, cannot be predicted accurately from the incapacity scale. The socioeconomic survey revealed major improvement in patient support in New Zealand during the last decade. We consider that our New Zealand findings indicate the value of field officers concerned with co-ordination of services and provision of information for patients with MS. Future research should be directed towards assessment of support systems.

摘要

本文描述了一项针对居住在新西兰惠灵顿的120名多发性硬化症(MS)患者的失能和社会经济量表的研究。不同的健康专业人员对该问卷进行了比较。不同专业人员在失能分析方面的观察结果之间存在良好的相关性,并且通过将问题减少到六个,这种相关性可能会得到改善。然而,社会经济量表的结果无法从失能量表中准确预测。社会经济调查显示,在过去十年中,新西兰对患者的支持有了显著改善。我们认为,我们在新西兰的研究结果表明了实地工作人员对于协调服务和为MS患者提供信息的价值。未来的研究应针对支持系统的评估。

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