Madonna M G, Hannah B, LaRocca N G
Acta Neurol Scand Suppl. 1984;101:139-42. doi: 10.1111/j.1600-0404.1984.tb02564.x.
The Minimal Record of Disability (MRD), developed by the International Federation of Multiple Sclerosis Societies, was field tested by Patient Services Staff in Multiple Sclerosis chapters and community settings in the United States and Canada. The goals of this initial field testing project were to determine acceptance and feasibility of using the Minimal Disability System in MS chapter and community settings and to illustrate potential applications of this instrument in planning patient service programs. An additional goal was to evaluate the MS chapter and community experience in using the MRD and the potential of it's continued use in patient service. One hundred and sixty MS persons were interviewed for the project in fifteen MS chapter and community settings. In this paper we will present our findings and a summary evaluation of the field testing experience.
由国际多发性硬化症协会制定的《最低限度残疾记录》（MRD），在美国和加拿大的多发性硬化症分会及社区环境中，由患者服务人员进行了实地测试。这个初始实地测试项目的目标是确定在多发性硬化症分会和社区环境中使用最低限度残疾系统的可接受性和可行性，并说明该工具在规划患者服务项目中的潜在应用。另一个目标是评估多发性硬化症分会和社区在使用MRD方面的经验以及其在患者服务中持续使用的潜力。在15个多发性硬化症分会和社区环境中，有160名多发性硬化症患者接受了该项目的访谈。在本文中，我们将展示我们的研究结果以及对实地测试经验的总结评估。
