Ferrari M, Matthews W S, Barabas G
Fam Process. 1983 Mar;22(1):53-9. doi: 10.1111/j.1545-5300.1983.00053.x.
Reports documenting psychosocial epiphenomena of chronic illness in individuals with that illness have been common in recent years. Few studies, however, have been concerned with how illness might affect the family. Those that have appeared in the literature often lack critical controls (i.e., control groups) and often fail to investigate possible links between illness-specific variables (i.e. chronicity, inhibition of mobility) and psychosocial outcomes on the family. The present study of 45 families focused on how children with epilepsy affect their families' functioning relative to families with a child with diabetes and families with no chronically ill members. The results suggest several areas of child and family adjustment (i.e. child self-concept, family communication, family cohesion) in which the families of epileptic children have great difficulty. Implications of these results are discussed with regard to differential influences of various chronic illnesses on families and family-based preventive and remedial treatment programs.
近年来,记录患有慢性疾病个体心理社会附带现象的报告屡见不鲜。然而,很少有研究关注疾病如何影响家庭。文献中出现的那些研究往往缺乏关键对照(即对照组),并且常常未能调查特定疾病变量(如慢性病、行动受限)与家庭心理社会结果之间的可能联系。本项针对45个家庭的研究聚焦于癫痫患儿如何影响其家庭功能,相较于有糖尿病患儿的家庭以及没有慢性病成员的家庭。结果表明癫痫患儿家庭在儿童和家庭调适的几个方面(如儿童自我概念、家庭沟通、家庭凝聚力)存在很大困难。讨论了这些结果对于各种慢性疾病对家庭的不同影响以及基于家庭的预防和补救治疗方案的意义。