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癫痫与生活质量的相关性。

Correlates of quality of life with epilepsy.

作者信息

Malhi Prahbhjot, Singhi Pratibha

机构信息

Department of Pediatrics, Post Graduate Institute of Medical Education and Research, Chandigarh-160 012, India.

出版信息

Indian J Pediatr. 2005 Feb;72(2):131-5. doi: 10.1007/BF02760697.

Abstract

OBJECTIVE

To examine the quality of life of children with epilepsy and to identify the demographic, disease related, and behavioral and emotional functioning variables in the prediction of quality of life of children with epilepsy.

METHOD

Forty three children aged 4 to 15 years (Mean=10.3 years) with epilepsy were recruited from the outpatient services of the Department of Pediatrics, of a tertiary care teaching hospital in North India. Quality of life was measured by Impact of Epilepsy Schedule, a 39 items parent reported questionnaire and child's emotional and behavioral functioning at home was assessed by the Childhood Psychopathology Measurement Schedule.

RESULTS

Majority of the parents expressed major concerns regarding seizures, treatment by anticonvulsants, present and future problems for the child and problems in parenting. Nearly 40% of the children had psychopathology scores in the clinically significant maladjustment range. Step-wise multiple regression analysis revealed that the psychopathology scores and mother's education accounted for 39% of the variance in the quality of life scores.

CONCLUSION

Children with epilepsy have a relatively compromised quality of life and focusing simply on control of seizures may not address the full range of child's emotional and behavioral difficulties.

摘要

目的

研究癫痫患儿的生活质量,并确定在预测癫痫患儿生活质量时的人口统计学、疾病相关以及行为和情感功能变量。

方法

从印度北部一家三级护理教学医院儿科门诊招募了43名4至15岁(平均年龄 = 10.3岁)的癫痫患儿。生活质量通过《癫痫影响量表》进行测量,这是一份由家长报告的包含39个条目的问卷,同时通过《儿童精神病理学测量量表》评估患儿在家中的情感和行为功能。

结果

大多数家长对癫痫发作、抗惊厥药物治疗、孩子当前和未来的问题以及育儿问题表示了主要担忧。近40%的儿童精神病理学得分处于临床显著适应不良范围内。逐步多元回归分析显示,精神病理学得分和母亲的教育程度占生活质量得分方差的39%。

结论

癫痫患儿的生活质量相对受损,单纯关注癫痫发作的控制可能无法解决患儿所有的情感和行为困难。

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