西北泰晤士神经疾病登记处
North West Thames registry of neurological disease.
作者信息
Haberman S, Benjamin B, Capildeo R, Rose F C
出版信息
J R Soc Med. 1982 Jun;75(6):443-9. doi: 10.1177/014107688207500613.
A feasibility study has been carried out to determine whether a population-based registry of neurological disease can be established using the Hospital (Inpatient) Activity Analysis (HAA) records for England and Wales. The study provides a valuable opportunity to use and test the HAA system. The neurological disease chosen was the Guillain-Barré-Strohl syndrome (GBS), because it would be expected that most patients would be admitted to hospital, and recurrent attacks or chronicity are rare. In this study it has been demonstrated that, for GBS, a neurological registry, based on HAA records, provided an excellent source of data to measure the incidence of the disease and potentially any change of incidence over time. The proportion of coding errors was found to be under 5%.
已开展一项可行性研究，以确定能否利用英格兰和威尔士的医院（住院）活动分析（HAA）记录建立一个基于人群的神经系统疾病登记处。该研究为使用和测试HAA系统提供了一个宝贵机会。所选的神经系统疾病是吉兰-巴雷-施罗尔综合征（GBS），因为预计大多数患者会住院，且复发或慢性发作情况罕见。本研究表明，对于GBS而言，基于HAA记录的神经系统疾病登记处为测量该疾病的发病率以及潜在的发病率随时间的任何变化提供了极佳的数据来源。发现编码错误的比例低于5%。
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