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伪患者研究合理吗?

Are pseudo-patient studies justified?

作者信息

Bulmer M

出版信息

J Med Ethics. 1982 Jun;8(2):65-71. doi: 10.1136/jme.8.2.65.

Abstract

Pseudo-patient studies are studies in which a medical sociologist or anthropologist masquerades as a patient. Medical treatment is sought without revealing that the 'patient' is really a covert research worker. When access has thus been gained to a medical setting--typically a hospital ward--social interaction between medical staff and patients is then observed over a period of days or weeks. Important studies have been carried out in this way of psychiatric treatment and of the care of the terminally-ill. Is the use of the method justified? What ethical problems does its use raise? How do the undoubted advantages of the approach compare with the clear drawbacks and objections which can be made to its use?

摘要

伪患者研究是指医学社会学家或人类学家伪装成患者进行的研究。他们寻求医疗救治,却不透露“患者”实际上是秘密的研究人员。当以此方式进入医疗场所(通常是医院病房)后,研究人员会在数天或数周的时间里观察医护人员与患者之间的社会互动。通过这种方式,已经针对精神治疗和绝症护理开展了重要研究。这种方法的使用合理吗?其使用引发了哪些伦理问题?与使用该方法可能存在的明显弊端和反对意见相比,这种方法无疑具有的优势又如何呢?

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本文引用的文献

1
Social structure and interaction processes on a psychiatric ward.
Am J Orthopsychiatry. 1952 Apr;22(2):314-34. doi: 10.1111/j.1939-0025.1952.tb01959.x.
2
On being sane in insane places.身处疯人院而心智健全
Science. 1973 Jan 19;179(4070):250-8. doi: 10.1126/science.179.4070.250.
4
The nature of confidentiality.保密的性质。
J Med Ethics. 1979 Jun;5(2):57-64. doi: 10.1136/jme.5.2.57.

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