Kornfeld M S, Siegel I M
Health Soc Work. 1980 Nov;5(4):28-34. doi: 10.1093/hsw/5.4.28.
Parents of children with spinal muscular atrophy met in a group designed to clarify the psychosocial problems of raising a child with this fatal disease. The experiences, interactions, and responses of these parents were compared with those of a similar group of parents of children with Duchenne muscular dystrophy.
脊髓性肌萎缩症患儿的家长们聚在一起，组成了一个旨在厘清抚养患有这种致命疾病孩子所面临的心理社会问题的团体。这些家长的经历、互动和反应与另一组患有杜氏肌营养不良症患儿的家长进行了比较。
