Weiss J O
Soc Work Health Care. 1981 Summer;6(4):17-31. doi: 10.1300/J010v06n04_02.
Genetic disease affects not only the patients with the diagnosed genetic condition or the carrier of the genetic trait, but also parents, siblings, grandparents, spouses, and the community in which the patient lives. This paper delineates some of the major personal and social cost of genetic disease on a number of levels: personal, marital, parental, family, group, and community. Genetic social work is emerging as an essential new service to persons needing help with the emotional impact of a genetic diagnosis. It is important for social workers to be aware of all levels of stress associated with a genetic disorder in order to help individuals and those close to them cope with the diagnosis or occurrence of a genetic disorder, with the threat of a genetic disorder, and with the recurrent life stresses which they may encounter.
遗传疾病不仅会影响被诊断患有遗传疾病的患者或遗传特征的携带者，还会影响父母、兄弟姐妹、祖父母、配偶以及患者生活的社区。本文在个人、婚姻、父母、家庭、群体和社区等多个层面阐述了遗传疾病带来的一些主要个人和社会代价。遗传社会工作正逐渐成为一项重要的新服务，为那些因遗传诊断带来的情感影响而需要帮助的人提供支持。社会工作者了解与遗传疾病相关的所有压力层面非常重要，以便帮助个人及其亲近的人应对遗传疾病的诊断或发生、遗传疾病的威胁以及他们可能遇到的反复出现的生活压力。
