Bak S, Bak L
Odense Universiteshospital, neurologisk afdeling N.
Ugeskr Laeger. 1994 Jul 11;156(28):4138-40.
During a twelve year period 58 patients with motor neurone disease were admitted to the Department of Neurology, Odense University Hospital. The medical records were reviewed and different aspects of symptomatic treatment for these patients were recorded retrospectively. After the first admission 55% of the patients received out-patient treatment, while 31% had no further contact to the Department of Neurology. Forty-nine patients developed bulbar symptoms. Of these patients 41% were referred to a laryngologist, 27% were referred to a speech therapist and 10% to a nutritionist. Seven patients had a gastrostomy, while feeding tube was used by at least six patients. At the time of follow up 49 patients had died, 63% in hospital. At least 22 patients were treated with morphine in the last period of their lives. In order to improve the symptomatic treatment in motor neurone disease we suggest that these patients are treated at the neurological departments by interdisciplinary teams with particular interest in motor neurone disease.
在12年期间，58例运动神经元病患者被收治于欧登塞大学医院神经内科。回顾了病历并对这些患者对症治疗的不同方面进行了回顾性记录。首次入院后，55%的患者接受门诊治疗，而31%的患者未再与神经内科联系。49例患者出现延髓症状。在这些患者中，41%被转诊至耳鼻喉科医生处，27%被转诊至言语治疗师处，10%被转诊至营养师处。7例患者进行了胃造口术，至少6例患者使用了饲管。随访时49例患者已死亡，63%死于医院。至少22例患者在生命的最后阶段接受了吗啡治疗。为了改善运动神经元病的对症治疗，我们建议这些患者在神经内科由对运动神经元病特别感兴趣的多学科团队进行治疗。
