Aarli J A, Tysnes O B
Nevrologisk avdeling, Haukeland Sykehus, Bergen.
Tidsskr Nor Laegeforen. 1997 May 20;117(13):1892-5.
An out-patient service for patients suffering from amyotrophic lateral sclerosis (ALS), the ALS-clinic, was established at the Department of Neurology, Haukeland Hospital, in 1990. The number of ALS patients who were hospitalised during the period 1990-1995 was 59, with a mean stay in hospital of 14.8 days. Eleven of the patients died in hospital. The ALS-clinic had 127 consultations during the same period, with a mean of 2.2 consultations per patient. Speech difficulties were the dominating problem at 26 of the consultations. 32 patients experienced feeding difficulties, and a percutaneous endoscopic gastrostomy was performed in nine cases. Respiratory problems dominated in ten patients, but only two of these patients wanted a home ventilator. Various assistive devices were adapted for 16 patients.
1990年，豪克兰德医院神经科设立了肌萎缩侧索硬化症（ALS）患者门诊服务，即ALS诊所。1990年至1995年期间住院的ALS患者有59例，平均住院时间为14.8天。其中11例患者在医院死亡。同期ALS诊所进行了127次会诊，平均每位患者会诊2.2次。26次会诊中，言语困难是主要问题。32例患者存在进食困难，其中9例进行了经皮内镜下胃造口术。10例患者以呼吸问题为主，但其中只有2例患者希望使用家用呼吸机。为16例患者适配了各种辅助设备。
