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在国家皮肤中心进行的一项基于问卷调查的患者银屑病知识调查。

A questionnaire-based survey of patients' knowledge of psoriasis at the National Skin Centre.

作者信息

Tham S N, Tay Y K

机构信息

National Skin Centre, Singapore.

出版信息

Ann Acad Med Singap. 1995 May;24(3):415-20.

PMID:7574425
Abstract

Psoriasis is a chronic disease, which while potentially controllable, cannot be cured. Treatment is long term and requires continuous effort by the patient. Patient education is important for a chronic disease like psoriasis and this involves acquiring knowledge about the disease. With knowledge gained, the patient will be better able to cope, improve decision-making and comply with treatment. The aim was to determine the level of knowledge of psoriasis among four groups of patients attending the National Skin Centre. The study population consisted of 120 patients divided into four groups with 30 patients each from the general clinic, psoriasis clinic, private clinic and phototherapy clinic. The patients were asked to fill up a questionnaire. For those who were Chinese educated, a Mandarin translation of the questionnaire was made. The patients' age ranged from 13 to 83 years with a mean of 39 years. The mean duration of psoriasis was 9 years. Patients from the phototherapy clinic scored significantly higher than patients from the other clinics. There were, however, gaps in the knowledge of psoriasis among the various groups. No correlation was noted between age, sex, duration of psoriasis, number of consultations or phototherapy session with correct scores to the questionnaire. The most common treatment prescribed for the general and private clinics was a combination of topical steroids and tar (67% and 44% respectively). For the psoriasis clinic, the most common treatment prescribed was methotrexate (60%). For the phototherapy clinic, the most common modality used was ultraviolet B light (60%). Education is important in the overall treatment of psoriasis patients.(ABSTRACT TRUNCATED AT 250 WORDS)

摘要

银屑病是一种慢性疾病,虽有可能得到控制,但无法治愈。治疗是长期的,需要患者持续努力。对于银屑病这种慢性疾病来说,患者教育很重要,这包括了解有关该疾病的知识。有了这些知识,患者将更有能力应对、改善决策并遵行治疗。目的是确定在国家皮肤中心就诊的四组患者对银屑病的了解程度。研究对象包括120名患者,分为四组,每组30人,分别来自普通门诊、银屑病门诊、私立诊所和光疗门诊。患者被要求填写一份问卷。对于接受中文教育的患者,制作了问卷的普通话译本。患者年龄在13至83岁之间,平均年龄为39岁。银屑病的平均病程为9年。光疗门诊的患者得分显著高于其他门诊的患者。然而,不同组之间在银屑病知识方面存在差距。未发现年龄、性别、银屑病病程、就诊次数或光疗疗程与问卷正确得分之间存在相关性。普通门诊和私立诊所最常用的治疗方法是外用类固醇和焦油联合使用(分别为67%和44%)。对于银屑病门诊,最常用的治疗方法是甲氨蝶呤(60%)。对于光疗门诊,最常用的方式是紫外线B光(60%)。教育在银屑病患者的整体治疗中很重要。(摘要截选至250字)

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引用本文的文献

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Psoriasis Patients' Knowledge about the Disease and Treatments.银屑病患者对疾病及治疗的了解
Dermatol Res Pract. 2013;2013:921737. doi: 10.1155/2013/921737. Epub 2013 Jun 24.