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[处于终末期的患者及其照护者作为一个“二元组”:他们如何看待生命的有限阶段,如何应对它?——一项纵向研究的结果]

[Patients in the terminal phase and their caregivers as a "dyad": how do they perceive the finite stage of life, how do they cope with it?--Results of a longitudinal study].

作者信息

Kruse A

机构信息

Lehrstuhl für Entwicklungspsychologie der Lebensspanne/Pädagogische Psychologie Ernst-Moritz-Arndt-Universität Greifswald, Greifswald.

出版信息

Z Gerontol Geriatr. 1995 Jul-Aug;28(4):264-72.

PMID:7584542
Abstract

50 patients in the terminal phase who were treated at home by medical doctors, and their caregivers (one caregiver a family) were interviewed up to six times in a longitudinal study. Additionally, scales for assessing degree of independence in daily living, intensity of pain, and engagement in intra- and extrafamilial relationships were used. --Interindividual differences in perceiving (own) finitude and in coping with it were high in the group of patients and caregivers. Moreover, patients' and caregivers' forms of perceiving and coping with finitude were related. These relations point to the necessity of a "dyadic" perspective in analyzing patterns of perceiving and coping with finitude. --In the group of patients, perceiving own finitude and coping with it was also related to intensity of pain, degree of independence in daily life, degree of perceived social integration, and to the feeling of being needed. Results of our study do not confirm the assumption that there is a characteristic pattern of perceiving and coping with finitude in terminally ill patients and their caregivers.

摘要

在一项纵向研究中,对50名在家接受医生治疗的晚期患者及其照顾者(每个家庭一名照顾者)进行了多达六次的访谈。此外,还使用了评估日常生活独立程度、疼痛强度以及家庭内外人际关系参与度的量表。——患者和照顾者群体在感知(自身)有限性及其应对方式上的个体差异很大。此外,患者和照顾者感知和应对有限性的方式是相关的。这些关系表明,在分析感知和应对有限性的模式时,有必要采用“二元”视角。——在患者群体中,感知自身有限性并应对它也与疼痛强度、日常生活独立程度、感知到的社会融合程度以及被需要的感觉有关。我们的研究结果并未证实绝症患者及其照顾者存在一种感知和应对有限性的特征模式这一假设。

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