Shapiro Barbara S, Dinges David F, Orne Emily Carota, Bauer Nancy, Reilly Linnette B, Whitehouse Wayne G, Ohene-Frempong Kwaku, Orne Martin T
Pain Management Service, Division of General Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA 19104 USA Division of Hematology, Children's Hospital of Philadelphia, Philadelphia, PA 19104 USA Unit for Experimental Psychiatry, Institute of Pennsylvania Hospital, Philadelphia, PA 19139 USA Department of Psychology in Psychiatry, Institute of Pennsylvania Hospital, Philadelphia, PA 19139 USA University of Pennsylvania School of Medicine, Philadelphia, PA 19104 USA.
Pain. 1995 Apr;61(1):139-144. doi: 10.1016/0304-3959(94)00164-A.
Some children and adolescents with sickle cell disease experience frequent painful episodes. To gain information about the natural history of the pain and its impact on sleep and school attendance, we developed a home-based diary system. Eighteen children and adolescents completed 4756 diary days, with an average compliance of 75%. Pain was reported on 30% of days and was managed at home nine-tenths of the time. Girls reported more days with pain than did boys, and age was positively correlated with the length of the painful episodes. The pain affected school attendance and sleep. Patients were absent from school on 21% of 3186 school days, with half of the absenteeisms on days with reported pain. Of the pain-associated absenteeisms, two-thirds occurred when pain was managed at home, and one-third when patients were hospitalized. The average consecutive number of school days missed was 2.7. These findings have implications for developmentally critical activities.
一些患有镰状细胞病的儿童和青少年经常经历疼痛发作。为了了解疼痛的自然史及其对睡眠和上学出勤率的影响，我们开发了一种基于家庭的日记系统。18名儿童和青少年完成了4756个日记日，平均依从率为75%。30%的日子报告有疼痛，其中十分之九的时间是在家中处理。女孩报告有疼痛的天数比男孩多，年龄与疼痛发作的时长呈正相关。疼痛影响上学出勤率和睡眠。在3186个上学日中，患者有21%的缺勤，其中一半的缺勤发生在报告有疼痛的日子。在与疼痛相关的缺勤中，三分之二发生在在家处理疼痛时，三分之一发生在患者住院时。平均连续缺课天数为2.7天。这些发现对发育关键活动具有启示意义。
