Demi A S, Warren N A
School of Nursing, Georgia State University, Atlanta, USA.
West J Nurs Res. 1995 Apr;17(2):188-202. doi: 10.1177/019394599501700206.
This article explores methodological and ethical issues in the conduct of research with vulnerable families. Some methodological and ethical issues are common to all family research, regardless of the families' vulnerability; however, many research issues are more problematic in vulnerable families, and a few issues are relatively unique to vulnerable families. Vulnerable families are defined as families that are susceptible to harm because of their socioeconomic status, their minority status, or other stigmatizing status. Methodological issues include definition of family; recruitment and retention of participants; reliability and validity of instruments; and racism, classism, and sexism. Ethical issues include confidentiality, reporting abuse and neglect, conflict of research ethics and personal ethics, identifying problems nobody can fix, balancing demands and benefits, and interpretation of data. Examples of methodological and ethical issues are drawn from several research studies in which the primary author was or is currently involved.
本文探讨了对弱势家庭开展研究时的方法学和伦理问题。一些方法学和伦理问题在所有家庭研究中都很常见，无论家庭是否弱势；然而，许多研究问题在弱势家庭中更具挑战性，还有一些问题相对而言是弱势家庭所特有的。弱势家庭被定义为因其社会经济地位、少数族裔身份或其他污名化身份而容易受到伤害的家庭。方法学问题包括家庭的定义；参与者的招募与留存；工具的可靠性和有效性；以及种族主义、阶级主义和性别歧视。伦理问题包括保密性、报告虐待和忽视行为、研究伦理与个人伦理的冲突、识别无法解决的问题、平衡需求与益处以及数据解读。方法学和伦理问题的示例取自几项主要作者参与过或目前仍在参与的研究。
