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一项对脑死亡患者家属的调查:他们的经历、对器官捐赠和移植的态度。

A survey of families of brain dead patients: their experiences, attitudes to organ donation and transplantation.

作者信息

Pearson I Y, Bazeley P, Spencer-Plane T, Chapman J R, Robertson P

机构信息

Westmead Hospital, New South Wales.

出版信息

Anaesth Intensive Care. 1995 Feb;23(1):88-95. doi: 10.1177/0310057X9502300116.

DOI:10.1177/0310057X9502300116
PMID:7778754
Abstract

A questionnaire survey of 69 families of brain dead patients is reported. The study population included those who had been asked about organ donation as well as those who had not, those who had agreed to organ donation and those who had declined. Their experiences and their perceptions of treatment and explanations of underlying disease, brain death and organ donation were examined. Their own knowledge of and attitudes towards organ donation as well as the prior knowledge and wishes of their deceased relative were also explored. Statistical analysis did not show any differences between the three groups of families with regard to their experiences, their perceptions of the treatment they received, or in the resolution of their grief. Family members who had agreed to organ donation were significantly more likely to donate their own organs and to be more resolved in their grief. There was a strong correspondence between the attitudes of respondents and their agreement or otherwise to donate their relatives' organs. One quarter, however, made the opposite choice for their relative, where their relative's wishes were known. There was a highly significant relationship between those who had previously discussed organ donation to have expected to be asked or to raise the subject themselves. Hospital treatment in general did not appear to have any effect on the decision to donate. Involvement in organ donation was felt by most of the donor families to have been helpful to the grieving process.

摘要

本文报告了一项针对69个脑死亡患者家庭的问卷调查。研究对象包括那些被询问过器官捐赠的患者家庭以及未被询问过的家庭,同意器官捐赠的家庭和拒绝捐赠的家庭。研究考察了他们的经历、对治疗的看法以及对潜在疾病、脑死亡和器官捐赠的解释。此外,还探究了他们自身对器官捐赠的了解和态度,以及其已故亲属的预先认知和意愿。统计分析表明,这三组家庭在经历、对所接受治疗的看法或悲伤情绪的缓解方面均未显示出任何差异。同意器官捐赠的家庭成员更有可能捐赠自己的器官,且在悲伤情绪中表现得更为释怀。受访者的态度与其同意或不同意捐赠亲属器官之间存在强烈的对应关系。然而,在知晓亲属意愿的情况下,四分之一的受访者做出了与亲属意愿相反的选择。那些之前讨论过器官捐赠并期望被询问或自己提出该话题的人之间存在高度显著的关系。总体而言,医院治疗似乎对捐赠决定没有任何影响。大多数捐赠者家庭认为参与器官捐赠对悲伤过程有所帮助。

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