Barrett G, Victor C R
Department of Public Health, Kensington & Chelsea and Westminster Commissioning Agency, London, UK.
AIDS Care. 1994;6(4):423-33. doi: 10.1080/09540129408258657.
The nature of the HIV epidemic in the UK is changing with the increasing number of infected women and children. This recent onset means that there are few data about the specific problems of HIV in families. This study examines current issues in service provision to HIV infected children and their families at an inner-London teaching hospital. A sample of ten families were interviewed, from a caseload of approximately 100 HIV-positive children. Of the ten children, seven were under the age of 5 years. All the children were vertical transmissions and six of the mothers were from Sub-Saharan Africa. Only three of the ten children were identified antenatally. In terms of service provision, families were very satisfied with the care provided by the study hospital's paediatric HIV team but felt that the hospital's paediatric and adult HIV services were poorly co-ordinated and impractically located over different sites. Families did not have confidence in GP and community services, preferring to use hospital services which they felt to have more expertise in paediatric HIV. Future policy developments will have to confront the hospital-centred nature of paediatric HIV services and develop primary and community care services.
随着英国感染艾滋病毒的妇女和儿童数量不断增加，该国艾滋病毒流行的性质正在发生变化。这种近期出现的情况意味着关于家庭中艾滋病毒具体问题的数据很少。本研究调查了伦敦一家教学医院为感染艾滋病毒的儿童及其家庭提供服务的当前问题。从大约100名艾滋病毒呈阳性儿童的病例中抽取了10个家庭进行访谈。在这10名儿童中，7名年龄在5岁以下。所有儿童均为母婴传播，其中6名母亲来自撒哈拉以南非洲。10名儿童中只有3名在产前被确诊。在服务提供方面，家庭对研究医院的儿科艾滋病毒团队提供的护理非常满意，但认为医院的儿科和成人艾滋病毒服务协调不佳，且分布在不同地点，不切实际。家庭对全科医生和社区服务没有信心，更愿意使用他们认为在儿科艾滋病毒方面更具专业知识的医院服务。未来的政策发展将不得不面对儿科艾滋病毒服务以医院为中心的性质，并发展初级和社区护理服务。
