Gibb D M, Masters J, Shingadia D, Trickett S, Klein N, Duggan C, Novelli V, Mercey D
Department of Infectious Diseases, Great Ormond Street Hospital for Children NHS Trust, London.
Arch Dis Child. 1997 Dec;77(6):478-82. doi: 10.1136/adc.77.6.478.
A family clinic providing specialist paediatric and adult medical, testing, counselling, and terminal care services for families living with HIV was set up at a paediatric tertiary care hospital in London in 1991. During the first five years, until April 1996, 185 children from 149 families attended, including 119 infected children, of whom 32 have died. Only 5% of mothers were born in the UK; the rest were born in 24 different countries, the majority in sub-Saharan Africa. Less than a quarter of children were cared for by both parents, 61% by mothers alone, and 11% by guardians or foster parents. Of the adult attendees, 76% were women, and more than half were untested when they first attended the clinic. Provision of a family planning service within the family clinic was initiated as a result of women presenting with unplanned pregnancies. Shared care with local clinics is increasing, but with the complexity around the management of paediatric HIV infection, particularly with regard to antiretroviral treatments, there is need for continued specialist input. Coordination among specialist and locally based family services is required to provide flexible, accessible, and up to date care for families living with HIV infection in London.
1991年，伦敦一家儿科三级护理医院设立了一家家庭诊所，为感染艾滋病毒的家庭提供专业的儿科和成人医疗、检测、咨询及临终关怀服务。在最初的五年里，即到1996年4月，149个家庭的185名儿童前来就诊，其中包括119名受感染儿童，有32名已经死亡。只有5%的母亲在英国出生；其余的母亲出生在24个不同的国家，大多数来自撒哈拉以南非洲。不到四分之一的儿童由父母双方照顾，61%仅由母亲照顾，11%由监护人或养父母照顾。在成年就诊者中，76%为女性，超过一半的女性在首次到诊所就诊时未接受检测。由于有意外怀孕的女性前来就诊，因此在家庭诊所内开始提供计划生育服务。与当地诊所的共享护理正在增加，但鉴于儿科艾滋病毒感染管理的复杂性，特别是在抗逆转录病毒治疗方面，仍需要持续的专业投入。需要专科服务和当地家庭服务之间进行协调，以便为伦敦感染艾滋病毒的家庭提供灵活、便捷和最新的护理。
