Ferrell B R, Dean G E
City of Hope National Medical Center, Duarte, California.
J Palliat Care. 1994 Autumn;10(3):67-72.
This review of several studies from the authors' program of research supports the notion that the experience of pain, particularly in the home, has a profound effect not only on the patient, but on family and health care providers as well. Family caregivers revealed their private grief and burden when describing the physical suffering they witnessed. They faced the daily responsibility of making decisions regarding a loved one's pain, and the decisions often resulted in ethical conflicts. Caregivers generally felt ill-prepared for the administration of pain medication. They struggled to balance the need for medications to relieve pain against the perceived unwanted side effects and fear of addiction. These studies also demonstrate that a concerted effort must be made by health care providers to support the pain management role of family caregivers. By listening, being available, making pain management a priority, and reinforcing appropriate pain management principles, health care professionals help sustain family caregivers in carrying out their anguishing and unrelenting task.
作者研究项目中的几项研究综述支持了这样一种观点，即疼痛体验，尤其是在家中的疼痛体验，不仅对患者，而且对家庭和医疗保健提供者都有深远影响。家庭护理人员在描述他们目睹的身体痛苦时，透露了他们内心的悲痛和负担。他们每天都要面对为亲人的疼痛做出决策的责任，而这些决策往往会导致伦理冲突。护理人员普遍觉得自己对疼痛药物的管理准备不足。他们努力在缓解疼痛所需的药物与感知到的不良副作用和成瘾恐惧之间取得平衡。这些研究还表明，医疗保健提供者必须齐心协力支持家庭护理人员在疼痛管理方面的作用。通过倾听、随时提供帮助、将疼痛管理作为优先事项以及强化适当的疼痛管理原则，医疗保健专业人员有助于维持家庭护理人员履行他们痛苦而艰巨的任务。
