Mellem H, Bendz B
Lungemedisinsk avdeling, Ullevål sykehus, Oslo.
Tidsskr Nor Laegeforen. 1995 Feb 28;115(6):699-702.
31 adult patients have been treated with home mechanical ventilation. 17 were poliomyelitis patients, eight myopathies, the rest had miscellaneous diagnoses. Median duration of treatment is five years (range one month--38 years). Of the 26 patients who are still alive, ten have a tracheostomy and 16 are ventilated non-invasively. In the group with the most severe functional disability (n = 12) the median cost of home care was NOK 656,460 per year. The median cost was NOK 140,000 for the group with moderate need of home care (n = 4) and NOK 0 in the self-sufficient group (n = 10). Both the total number of patients treated with home mechanical ventilation and the fraction of patients requiring both high-cost home care and hospitalisation will increase. A new national plan is needed for organising and financing both the hospital services and health care in the community.
31例成年患者接受了家庭机械通气治疗。其中17例为脊髓灰质炎患者,8例为肌病患者,其余患者诊断各异。治疗的中位持续时间为5年(范围为1个月至38年)。在仍存活的26例患者中,10例行气管切开术,16例接受无创通气。在功能残疾最严重的组(n = 12)中,家庭护理的年中位费用为656,460挪威克朗。家庭护理需求中等的组(n = 4)的中位费用为140,000挪威克朗,自给自足组(n = 10)的中位费用为0挪威克朗。接受家庭机械通气治疗的患者总数以及需要高成本家庭护理和住院治疗的患者比例都将增加。需要一项新的国家计划来组织和资助医院服务以及社区医疗保健。