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伦理问题与乳腺癌患者

Ethical issues and the breast cancer patient.

作者信息

Cummings N B

机构信息

National Institute of Diabetes and Digestive and Kidney Disease, National Institutes of Health, Bethesda, Md 20892.

出版信息

Arch Pathol Lab Med. 1994 Nov;118(11):1077-80.

PMID:7979890
Abstract

The association of cancer and death in laypeoples' thinking has resulted in discussions of cancer diagnoses often being held sub rosa. Open acceptance of a diagnosis of cancer cannot only help to dispel associated fears but also can serve to educate other persons to recognize that cancers can be cured. Open discussion of diagnoses of breast cancer by well-known public figures increasingly has focused media attention on related issues. Numerous ethical issues applicable to breast cancer (and to other chronic and/or cancer diagnoses) include: informed consent; education of relatives, friends, and public; patients' comfort in discussion of their diagnoses and treatment; access to care; and allocation of scarce resources. Genuine informed consent involves discussions of all relevant medical issues with the patient so that she understands the ramifications of the diagnoses, treatment, risks, and benefits of undergoing or of refusing treatment; and enables the patient to make a reasoned autonomous decision. Sufficient time must be allowed for development of this understanding because all persons, but especially apprehensive patients, tend to be selective in their hearing of explanations: to hear what they are afraid to hear, what they want to hear, and what they are prepared to hear. Limitations of funding for health care raise further questions about access to needed treatment. The concerns of the NIH Office of Research on Women's Health and of the Women's Health Initiative include breast cancer, as do those of the populace at large.

摘要

在普通人的认知中,癌症与死亡的关联使得关于癌症诊断的讨论常常私下进行。公开接受癌症诊断不仅有助于消除相关恐惧,还能教育他人认识到癌症是可以治愈的。知名公众人物对乳腺癌诊断的公开讨论日益引起媒体对相关问题的关注。适用于乳腺癌(以及其他慢性疾病和/或癌症诊断)的众多伦理问题包括:知情同意;对亲属、朋友和公众的教育;患者在讨论其诊断和治疗时的舒适度;获得医疗服务;以及稀缺资源的分配。真正的知情同意包括与患者讨论所有相关医疗问题,以便她理解诊断、治疗、风险以及接受或拒绝治疗的益处的后果;并使患者能够做出合理的自主决定。必须留出足够的时间来达成这种理解,因为所有人,尤其是焦虑的患者,在听取解释时往往会有选择性:只听他们害怕听到的、想听的以及准备好听的内容。医疗保健资金的限制引发了关于获得所需治疗的更多问题。美国国立卫生研究院妇女健康研究办公室和妇女健康倡议所关注的问题包括乳腺癌,广大民众也是如此。

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