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卫生部门关于苯丙酮尿症筛查项目的调查。

Survey of departments of health about PKU screening programs.

作者信息

Steiner K C, Smith H A

出版信息

Public Health Rep. 1975 Jan-Feb;90(1):52-4.

PMID:803697
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1434716/
Abstract

Mailed questionnaires were used to examine the success of PKU (phenylketonuria) screening programs that were operated by departments of health and to examine differences between these programs. Of 55 departments, 44 were returned and 42 departments reported they had a PKU detection program. Thirty-eight respondents considered the PKU detection program to be effective, and 31 respondents indicated that the entire program cost $60,000 or less per year. The answers and comments on the questionnaires showed a generally positive view of the effectiveness about the value of the treatment program in general were also positive. However, a few departments indicated that more clinical evidence and experience were needed to fully evaluate the overall merits of PKU detection and screening programs.

摘要

通过邮寄调查问卷来检验由卫生部门开展的苯丙酮尿症(PKU)筛查项目的成效,并考察这些项目之间的差异。在55个部门中,44份问卷被收回,42个部门报告称他们有苯丙酮尿症检测项目。38名受访者认为苯丙酮尿症检测项目有效,31名受访者表示整个项目每年花费6万美元或更少。问卷的答案和评论显示,总体上对治疗项目的有效性持积极看法,对其价值的看法也较为积极。然而,少数部门表示,需要更多的临床证据和经验来全面评估苯丙酮尿症检测和筛查项目的整体优点。

相似文献

1
Survey of departments of health about PKU screening programs.卫生部门关于苯丙酮尿症筛查项目的调查。
Public Health Rep. 1975 Jan-Feb;90(1):52-4.
2
Phenylketonuria (PKU): screening and management.苯丙酮尿症(PKU):筛查与管理
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3
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Phenylketonuria detected by the neonatal screening program in Thailand.泰国新生儿筛查项目检测出的苯丙酮尿症。
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Insurance coverage of special foods needed in the treatment of phenylketonuria.苯丙酮尿症治疗所需特殊食品的保险覆盖范围。
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PKU screening-is it worth it?苯丙酮尿症筛查——值得吗?
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Detection of phenylketonuria by the newborn screening program in Thailand.泰国新生儿筛查项目对苯丙酮尿症的检测。
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本文引用的文献

1
An evaluation of the treatment of phenylketonuria with diets low in phenylalanine.低苯丙氨酸饮食治疗苯丙酮尿症的评估
Pediatrics. 1960 Jul;26:1-11.
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ADVANCES IN THE MANAGEMENT OF PATIENT WITH PHENYLKETONURIA.苯丙酮尿症患者管理的进展
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VALIDATION OF A MODIFICATION OF THE GUTHRIE TEST FOR PHENYLKETONURIA.苯丙酮尿症古思里试验改良法的验证
Am J Ment Defic. 1965 May;69:790-3.
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PHENYLKETONURIA. A REVIEW OF SOME DEFICITS IN OUR INFORMATION.
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Phenylketonuria VIII. Relation between age, serum phenylalanine level, and phenylpyruvic acid excretion.苯丙酮尿症VIII. 年龄、血清苯丙氨酸水平与苯丙酮酸排泄之间的关系。
Proc Soc Exp Biol Med. 1957 Jan;94(1):142-6. doi: 10.3181/00379727-94-22880.
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7
Treated phenylketonuria: intelligence and blood phenylalanine levels.经治疗的苯丙酮尿症:智力与血液苯丙氨酸水平
Am J Ment Defic. 1971 Mar;75(5):539-45.
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Clinical and biochemical observations of patients with atypical phenylketonuria.
Pediatrics. 1970 Jan;45(1):83-92.
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Phenylalaninemia.苯丙酮尿症
Pediatr Clin North Am. 1968 May;15(2):313-23. doi: 10.1016/s0031-3955(16)32124-1.