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知情同意与亨廷顿舞蹈症:一种沟通模式

Informed consent and Huntington disease: a model for communication.

作者信息

Sharpe N F

出版信息

Am J Med Genet. 1994 Apr 15;50(3):239-46. doi: 10.1002/ajmg.1320500306.

Abstract

American and Canadian professional accreditation standards for medical genetics, and genetic counseling require certain abilities with regard to "communication." What remains unclear is how such standards are to be interpreted in terms of appropriate clinical protocols, objectives, and values. These issues have significant medical and legal implications, particularly with regard to medical malpractice. From the perspective of genetic testing for Huntington disease, this paper identifies those clinical objectives and practices which may be described as constituting the appropriate standard of care for "communication," and informed consent.

摘要

美国和加拿大医学遗传学及遗传咨询的专业认证标准对“沟通”提出了特定能力要求。尚不清楚的是,这些标准在适当的临床方案、目标和价值观方面应如何解读。这些问题具有重大的医学和法律意义,尤其是在医疗事故方面。从亨廷顿病基因检测的角度来看,本文确定了那些可被描述为构成“沟通”和知情同意适当护理标准的临床目标和做法。

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