Given B A, Given C W, Stommel M
Cancer Pract. 1994 May-Jun;2(3):187-93.
Other than loss of income to family members, little attention has been given to costs incurred by women with breast cancer and their families. Informal costs, such as the family labor for patient care and nonreimbursed out-of-pocket expenditures to care for the patient with breast cancer, need to be considered. Informal costs of women who survived for at least 3 months after the observation are compared with informal costs of a group of patients who died during the subsequent 3 months. Data for this longitudinal descriptive study were obtained from a convenience sample of 62 women with new or recurrent breast cancer. Data were collected at intake and at 3-month intervals across the 6-month observation. Data are presented for the out-of-pocket costs, primary family care-giver and "other" family labor costs, and total costs. Considering all costs, the 3-month average was $2,720 (SD, $3314) for the survivors and $7905 (SD, $5448) for the decedents. Regressions of costs on predictors were performed; survivors' status and patient dependencies in activities of daily living were the only significant predictors. Family care costs need to be considered along with the formal and direct reimbursable medical costs as an essential component of breast cancer care cost.
除了家庭成员收入损失外，乳腺癌患者及其家庭所产生的费用很少受到关注。需要考虑一些非正规费用，比如照顾患者的家庭劳动力以及用于照顾乳腺癌患者的未报销的自付支出。将观察后存活至少3个月的女性的非正规费用与随后3个月内死亡的一组患者的非正规费用进行比较。这项纵向描述性研究的数据来自62名新发或复发性乳腺癌女性的便利样本。在6个月的观察期内，在入组时和每隔3个月收集一次数据。呈现了自付费用、主要家庭照顾者和“其他”家庭劳动力费用以及总费用的数据。考虑所有费用，幸存者3个月的平均费用为2720美元（标准差为3314美元），死者为7905美元（标准差为5448美元）。对费用与预测因素进行了回归分析；幸存者状态和患者在日常生活活动中的依赖性是仅有的显著预测因素。家庭护理费用需要与正规的、可直接报销的医疗费用一起，作为乳腺癌护理费用的一个重要组成部分加以考虑。
