Fujiura G T, Roccoforte J A, Braddock D
Institute on Disability and Human Development, University of Illinois at Chicago 60608.
Am J Ment Retard. 1994 Nov;99(3):250-61.
"Out-of-pocket" spending by families supporting an adult family member with mental retardation or related developmental disability was characterized and estimated. Annualized nonreimbursed spending among a sample of 99 Chicago-area households was evaluated through survey and telephone interview across 10 categories of routine daily living expenses and disabilities-related services. The average annual out-of-pocket cost was $6,348. Average pre-tax income for the sample households was $37,657. Although wealthier households reported higher levels of spending, the percentage of household income represented by out-of-pocket costs increased significantly as family incomes decreased. Results were discussed in the context of families as a focus for service planning and public policy and the importance of the family to the nation's system of care.
对供养有智力迟钝或相关发育障碍成年家庭成员的家庭的“自付费用”进行了特征描述和估算。通过对芝加哥地区99户家庭样本进行调查和电话访谈，评估了10类日常生活费用和与残疾相关服务的年度未报销支出。平均每年自付费用为6348美元。样本家庭的平均税前收入为37657美元。虽然较富裕家庭报告的支出水平较高，但随着家庭收入下降，自付费用占家庭收入的百分比显著增加。在将家庭作为服务规划和公共政策重点以及家庭对国家护理体系重要性的背景下讨论了研究结果。
