Danion-Grilliat A, Bursztejn C, Babin-Boilletot A, Lutz P, Ebtinger R
Service psychothérapique pour Enfants et Adolescents, Hôpitaux Universitaires de Strasbourg, France.
Ann Med Psychol (Paris). 1994 Mar;152(3):149-60.
Bone marrow transplantation (BMT) is the last chance of recovery for some children suffering from malignant hemopathy or congenital blood disease. BMT with related donor radically alters previous family relationships: each member of the nuclear family becomes actively involved. Parents and siblings all undergo HLA typing. Only 30% of those who would benefit from bone marrow transplantation are lucky enough to have an HLA matched related donor, brother or sister. Our retrospective study concerned related donors and their parents. This paper reports the parents study. It was carried out at Strasbourg University Hospital. Parents were invited to speak about the child's illness, the graft reasons and their own position to regarding the choice of donor. Semi-structured interviews were used and their content analysed. The results highlight the expression by the parents of the need to maintain some control over the action which will save their child and establish an other gift system to keep their parental status.
骨髓移植（BMT）是一些患有恶性血液病或先天性血液疾病儿童恢复健康的最后希望。与亲属供者进行的骨髓移植从根本上改变了以往的家庭关系：核心家庭的每个成员都积极参与其中。父母和兄弟姐妹都要进行HLA分型。那些能从骨髓移植中获益的人，只有30%足够幸运地拥有HLA匹配的亲属供者，即兄弟姐妹。我们的回顾性研究涉及亲属供者及其父母。本文报告了对父母的研究。该研究在斯特拉斯堡大学医院进行。我们邀请父母讲述孩子的病情、移植的原因以及他们自己对于供者选择的立场。我们采用了半结构化访谈并对其内容进行了分析。结果突出了父母表达的一种需求，即需要对拯救孩子的行动保持一定的掌控，并建立另一种馈赠体系以维持其父母身份。
