Cohen M Z, Tripp-Reimer T, Smith C, Sorofman B, Lively S
University of Southern California, Department of Nursing, Los Angeles 90015.
Soc Sci Med. 1994 Jan;38(1):59-66. doi: 10.1016/0277-9536(94)90300-x.
Most cases of diabetes, a complex disorder that requires many lifestyle changes, can be controlled if persons adhere to their prescribed regimen. However, compliance is difficult to attain. Differences in explanatory models between client and practitioner have been suggested as one reason for non-compliance in several disorders. In this ethnographic investigation, individual explanatory models were elicited from persons with diabetes and from health professionals working with these patients. Professionals described models of diabetes in general and their model of a particular patient's diabetes. A composite professional model was constructed and compared with each of the patients' models. The models were most congruent regarding treatment. Etiology, pathophysiology, and severity had less congruence, and time and mode of symptom onset were least congruent. The Spearman correlation coefficient showed a positive but non-significant association of explanatory model congruence between professionals and patients with normal glycosylated hemoglobin levels. Patients and professionals seem to emphasize different domains; patients emphasized difficulties in the social domain and the impact of diabetes on their lives while staff saw diabetes primarily as a pathophysiological problem with impact on patients' physical bodies. This study's importance rests on its clear articulation of significant differences between patients' and staffs' models even when they are similar in demographic characteristics.
糖尿病是一种复杂的疾病,需要在生活方式上做出诸多改变。多数糖尿病病例,只要患者坚持医嘱治疗方案,病情就能得到控制。然而,患者往往难以做到遵医嘱治疗。在多种疾病中,患者与医生对疾病解释模式的差异被认为是导致患者不遵医嘱的一个原因。在这项人种学调查中,我们从糖尿病患者以及治疗这些患者的医护人员那里获取了他们各自的疾病解释模式。医护人员描述了糖尿病的一般模式以及某个特定患者的糖尿病模式。构建了一个综合的医护人员模式,并将其与每个患者的模式进行比较。在治疗方面,双方的模式最为契合。在病因、病理生理学和疾病严重程度方面,契合度较低,而症状出现的时间和方式契合度最低。斯皮尔曼相关系数显示,糖化血红蛋白水平正常的患者与医护人员之间,疾病解释模式的契合度呈正相关,但不显著。患者和医护人员似乎强调的是不同方面;患者强调社会方面的困难以及糖尿病对其生活的影响,而医护人员主要将糖尿病视为一个对患者身体有影响的病理生理问题。这项研究的重要性在于,即便患者和医护人员在人口统计学特征上相似,它也清晰地阐明了双方模式之间的显著差异。