Are physicians meeting the needs of family caregivers of the frail elderly?

OBJECTIVE

To explore expressed needs, both formal and informal, of family caregivers of frail elderly. To evaluate roles of physicians.

DESIGN

Questionnaire survey of members of the Montreal Jewish community providing care for frail elderly family members.

SETTING

Jewish community of Montreal.

PARTICIPANTS

Volunteer caregivers who were caring for a family member or friend 60 years or older, who had greatest responsibility for providing physical or emotional support to an elderly person, who saw themselves as caregivers, and who could speak English or French were studied. Of 118 volunteers, 32 were excluded because they withdrew for personal reasons or because they did not meet study criteria.

MAIN OUTCOME MEASURES

Demographic variables, functional status of the care receiver, use of home care services, and needs assessment to identify additional services.

RESULTS

An average of 75.4% respondents did not use formal support services. Just under half of caregivers were dissatisfied with the attention they received from the health care system, and more than one third expressed feelings of stress, depression, guilt, and isolation.

CONCLUSIONS

Hypotheses for this discontent are presented. Physicians may be uninterested in helping caregivers; even if they were receptive to counseling caregivers, they could be poorly remunerated for the types of counseling sessions that are usual for caregivers; and being a professional caregiver to family caregivers is demanding in itself.