Morin G, Ackermann-Liebrich U, Imbach P
Institute for Social and Preventive Medicine, University of Basel.
Soz Praventivmed. 1993;38(4):196-201. doi: 10.1007/BF01624536.
Since 1976 the Swiss Paediatric Oncology Groups (SPOG) has registered leukaemia cases occurring in Switzerland. The registration was set up for clinical research; however, since 1985 efforts have been made to complete the registers with cases not taking part in a clinical trial. The data of the SPOG register between 1976 and 1989 are compared to data from cancer registers and the mortality statistics of the Federal Office of Statistics. Between 1985 and 1988 the SPOG register included 91% of the cases recorded by the six cantonal registries. Compared to mortality data, registration was 100% in 1989. The SPOG data file can therefore be assumed to be complete enough to be used for epidemiological studies on incidence of leukaemias and on time trends of leukaemias in Switzerland.
自1976年以来,瑞士儿科肿瘤学组(SPOG)一直在登记瑞士发生的白血病病例。该登记是为临床研究设立的;然而,自1985年以来,一直在努力用未参与临床试验的病例来完善登记册。将1976年至1989年SPOG登记册的数据与癌症登记数据以及联邦统计局的死亡率统计数据进行比较。1985年至1988年期间,SPOG登记册涵盖了六个州登记处记录病例的91%。与死亡率数据相比,1989年的登记率为100%。因此,可以认为SPOG数据文件足够完整,可用于瑞士白血病发病率和白血病时间趋势的流行病学研究。