Williams H A
Department of Anthropology, University of Florida, Gainesville 32601.
Soc Sci Med. 1993 Dec;37(12):1509-20. doi: 10.1016/0277-9536(93)90185-7.
Characteristics of social networks and provision of support were examined for two groups of parents of chronically ill children, one group black and one group white. Black and white parents both reported similarities in the experience of parenting a child with a chronic illness. Both sets of parents relied primarily on family networks to provide much needed support. White networks were twice as large as black networks, although black parents perceived the individuals in their networks as being more supportive. For both groups, the networks were of long duration. Network members were geographically closer to blacks. White parents discussed support mostly in terms of affect. Black parents described support as instrumental actions. Differences in income levels between blacks and whites might account for differing descriptions of support. The experience of having a chronically ill child appears to override racism in the health care system. Black parents did not perceive any problems, based on race, that affected receiving medical care for their children.
研究了两组慢性病患儿家长的社交网络特征及支持提供情况,一组为黑人家长,另一组为白人家长。黑人和白人家长都表示,在抚养患有慢性病的孩子的经历方面存在相似之处。两组家长都主要依靠家庭网络来提供急需的支持。白人的社交网络规模是黑人的两倍,不过黑人家长认为他们社交网络中的人更具支持性。对于两组家长来说,社交网络的存续时间都很长。网络成员在地理位置上与黑人更近。白人家长大多从情感方面讨论支持。黑人家长将支持描述为实际行动。黑人和白人之间的收入水平差异可能导致了对支持的不同描述。患有慢性病孩子的经历似乎超越了医疗保健系统中的种族主义。黑人家长并未察觉到基于种族的、影响其孩子接受医疗护理的任何问题。