Platts R G, Fraser M H
Royal National Orthopaedic Hospital, Stanmore, Middlesex, England.
Paraplegia. 1993 May;31(5):280-7. doi: 10.1038/sc.1993.51.
The functional requirements for daily living at home are the same for a ventilator dependent quadriplegic person as they are for anyone, whether less severely disabled or able bodied. In persons with high spinal cord lesions, the necessary presence of a carer near to hand should not deter the use of assistive technology to increase independence. Maximised independence is desirable to free the carer from minute by minute tasks such as turning pages, switching lights, TV etc. This not only frees the carer for other tasks, making the caring task more bearable (and thus easier to recruit carers) but also vastly improves the morale of the disabled person. Some assistive devices, especially those concerned with mobility and transfer can avoid the need for multiple carers at times such as toiletting and going on car journeys. Whichever devices are required by the quadriplegic person, they all clearly need to be worked by a common, carefully selected input interface device matched to his or her preferences and physical abilities for switching. It is vital to ensure a technical integration of the four generic areas of device functionality: those of mobility (wheelchairs, cars), manipulation (page-turners, robotic arms), communication (keyboard emulators, voice processors, artificial speech) and control of the environment. In most countries this integration is poorly addressed owing to the different agencies involved in the provision of devices relating to each of these generic areas--despite the technology being available today.(ABSTRACT TRUNCATED AT 250 WORDS)
对于依赖呼吸机的四肢瘫痪者而言,在家中进行日常生活的功能需求与其他任何人相同,无论其残疾程度较轻还是身体健全。对于高位脊髓损伤患者,身旁随时有护理人员并不应妨碍使用辅助技术来增强其独立性。最大限度地实现独立有助于使护理人员从诸如翻页、开关灯、电视等琐碎任务中解脱出来。这不仅能让护理人员腾出精力去做其他工作,使护理任务更易于承受(从而更容易招募护理人员),还能极大地提升残疾人的士气。一些辅助设备,特别是那些与移动和转移相关的设备,在诸如上厕所和乘车出行等时候,可以避免需要多名护理人员。无论四肢瘫痪者需要何种设备,它们显然都需要通过一个经过精心挑选、与他或她的偏好及用于切换的身体能力相匹配的通用输入接口设备来操作。确保设备功能四个通用领域的技术集成至关重要:这些领域包括移动性(轮椅、汽车)、操作(翻页器、机械臂)、通信(键盘模拟器、语音处理器、人工语音)以及对环境的控制。在大多数国家,由于涉及提供与这些通用领域相关设备的机构不同,尽管如今已有相关技术,但这种集成仍未得到妥善解决。(摘要截选至250字)